Topics

insurance problems
my son has cf and we used to qualify for medi-cal. we were being seen at our local childrens hospital and received top notch care there. due to law changes and our income, we no longer qualify for state funded help. our insurance through our employer is proving to be difficult, damaging and bank ...
16.07.2010
CF - gene muatation
My grandsons (4,5 and 1,5 years) have mutations F508del and S466X. Can you tell me something about this combination?
12.07.2010
CF
What are the prognosis for a patients with CF who has combination of F501del / S466X gene mutation
07.06.2010
Genotype in CF
My two grandsons (one 18 months, the other 4 years) have CF with genotype F508del (egzon 10) and S466X (egzon 10) in CFTR gen. Can you tell me to which class of mutation belongs S466X and what are the prognosis for the children with this genotype.
11.06.2010
genetics question
My daughter was found at age three (she is now nine years old) to have the mutations F508 and 711 3a G. At time she has not experienced any significant lung involvement ( a few episodes of bronchitis) and she is pancreatic sufficient. I would like to ask what is the phenotype and the relative ...
21.06.2010
Kompressor/Inhalationsgeraet
Meine Tochter mit CF ist fast 16 Monate alt. In den USA benutzt sie die Pari ProNeb Ultra II um ihre Inhalationen zu machen (hypertonic saline und Pulmozyme). Wir sind jetzt in Deutschland und moechten ein aehnliches Geraet kaufen. Wir wissen aber nicht welches am besten ist, Pari Boy SX oder ...
09.06.2010
Operationen mit CF
Hallo, ich frage jetzt nun zum Zweiten mal, weil es langsam dringlicher wird. Ich bin 19 und habe CF. Ich möchte meine Brust chirurgisch, also mit Implantaten, aufbauen lassen, und daher die Frage: Was muss ich dabei hinsichtlich der CF beachten, mit Ausnahme der Anästhesie. Danke schön und ...
26.06.2010
Laboratorios
Que otros laboratorias aparte de la Roche producen un médicamento con las mismas caracteristicas que la Dornase Alfa de 2.5 gm?
05.06.2010
Tecnologia para Terapia respiratoria
Podría saber cuales son los aparatos más avanzados para hacer terapia respiratoria?
05.06.2010
port a cath
Dear Sir At the CF conference in Brest, I learned that, placing a port a cath in the upper arm, is quite normal in England. In Denmark we allways place a port in the chest. Some of our female patients, have shown interest in this new opportunity. We are interested in implementing this into our ...
29.01.2010

Displaying results 1 to 10 out of 60