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Patient with CF in Albania
- Question
- I am the Nurse Practitioner at the Cf clinic at the Hospital for Sick Children in Toronto, Canada.
I had a very distraught couple come to see me in my clinic last week. They are from Albania - living in Canada. They were visiting family this summer and met a family with a 3 month old baby recently diagnosed with CF. My understanding is that they were told that there was not much they could do for the baby and her physician put her on Nutramagen. She is still at her birth weight at age 3 months. She is terribly malnourished and needs treatment. I have seen the genetics and this baby is homozygous for DF508 so the diagnosisi is real.
The Canadian couple want to know where this baby can be treated. I was hoping that someone could help me with some suggestions as to where they can go close to Albania. I do not think that there is a CF clinic in Albania. I realize that this is a very poor country with few resources to even feed their population. This couple is mailing them the formula, but it sounds like they really need some enzymes and vitamins for now.
Do you have any suggestions for me to pass on to the family here? They want to bring the baby to Canada - but I think they should try to get help closer to home.
Looking forward to your answer. Thank you
Louise Taylor RN, MN, NP-P
Division of Respiratory Medicine
Hospital for Sick Children
Toronto Ontario CANADA - Please log in to read the answer.
- 21.12.2009
- The answer is edited by: Prof Stuart Elborn
