User login
Enter your username and password here in order to log in on the website:
Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Question on food oils
- Hello , I am currently asking a lot of questions about alimentary oils. Can CF people consume cold-extracted oils (rather used by small specialized companies) compared to refined, inert and virtually unalterable oils? Can we consume unrefined oils, cold extracted oils or is there a risk of ...
- 17.03.2017
- Mutations F508del / L227R
- Hello, My 3 year old son has cystic fibrosis that was diagnosed less than a year ago. The two mutations found were F508del and L227R. As we live in Morocco we do not have a genetic counseling center that can tell us the degree of severity of this type of mutations and how this will develop in the ...
- 24.02.2017
- Vegetarian
- Hello, I am 42 years old. I've CF (pre-transplantation exams done but not yet listed), no malnutrition problem, but diabetes. I would like to considerably reduce my consommation of meat for ethical reasons (and only the meat in a 1st time), replacing it with vegetable meat type Veggifood etc ...
- 14.02.2017
- Onion
- Hello, I heard that onions could be harmful for the CF patients because they might contain the B. cepacia bacteria. Can we still eat it? Even raw? Thank you for your answers.
- 14.02.2017
- Vitamins and CF
- Hello My 6-year-old CF son was diagnosed only last year. We don't live in France however we could visit a CF Center in France on 2 occasions. He has ADEK, E and D vitamins from the beginning (after blood test) and K vitamin for 3 months (without any blood test). Do I have to give him vitamins ...
- 20.01.2017
- Kreon® and breastfeeding
- Hello, My daughter is 1 year old and suckles day and night in a more or less brief way. I read that breast milk contained pancreatic enzymes. Because of this, for fear of giving too much and because of fatigue at night, I stopped giving her Kreon® for a few days during feedings. But I give it ...
- 20.01.2017
- Pancreatic insufficiency
- Hello, We have just got to know that our 2-month-old CF daughter is pancreatic insufficient. Yet, nourished by breastfeading, she has, for 2 months, gained a lot of weight. Could it not be a mistake? If she can't assimilate the fat, how has she gained weight since birth? Thank you for your ...
- 20.01.2017
- Smecta®
- Hello, In these periods of gastrointestinal epidemics or other causes of diarrhea, is smecta® contraindicated for a young CF patient in case of severe diarrhea and severe stomach pain? I read that this medicine was fixed to the mucus. Thank you!
- 20.01.2017
- Homeopathy, probiotics and immune defense
- Hello, My 3-year-old daughter has antibiotic cures (15 days) with no symptoms other than a cough that you can not get rid of (no Pseudomonas aeruginosa or other bacteria). Pharmacists often advise to take (at the end of the treatment) a cure of probiotics in order to rebalance her intestinal ...
- 05.12.2016
- Recommended amount of eurobiol® 25000u
- Hello, I am a mother of a 11-year-old child with CF (mutation Fd508). I reside in Morocco. I would like to know the number of eurobiol® 25000 unit capsules recommended for children of his age, depending on the amount of lipids in his diet. His diet is well balanced. Here below the amount of fat ...
- 05.12.2016