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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- hygiene
- Hello, I recently started working with patients with cystic fibrosis. I search all the recommendations on hygiene validated by recent studies. There are two recommendations on the website of Roscoff [France], dated in March 2004, including one for patients and one for professionals. Are these ...
- 03.02.2014
- School
- hello, My son will be soon in school and I have a lot of questions. Could school refuse or reject the rules of hygiene or refuse to give pancreatic enzymes? My CF center is against the establishment of a Mobility & Living Aid but I am very anxious for meals in the canteen. Can we have a Mobility & ...
- 27.01.2014
- Life in Quebec
- Hello, I would like to know how it works when we moved to Quebec regarding doctor, health insurance ... Thank you in advance
- 23.12.2013
- CF Screening
- Hello, I’m writing to get some information about CF gene screening. My girlfriend has a family relative with CF and as far as I’m concerned I’m not aware about such a case among my relatives. It doesn’t prevent us from having a chance to have a child with CF if we are both carrier. In ...
- 17.12.2013
- Problems with teeth
- My daughter, 2 years old, has extreme problems with her upper teeth. They are very thin, begin to break out. Can this also be related to the disease? Where can I get guidelines for dentists without experience in CF from? We have great fear to visit a doctor, as she already has extreme fear ...
- 17.12.2013
- 29 years old CF patient
- I am from Romania and I have a 29 years old son with CF, which was diagnosed late... when he was 24 (genetic mutation-milder form= G85E; R347P and sweat test= 110) In childhood he was diagnosed with a syndrome malabsorption. At age 12 he already had sinusitis and nutrition problems, dry cough.. ...
- 09.12.2013
- Appointments at the CF-center: which controls should be done?
- Hello! Our child (7 years, CF, underweight) has an appointment at the CF-center every 3 months. Auscultation of the lung is always done and a swab is taken (according to the infection even more often), once a year the blood is controlled. After first infection with Pseudomonas with i.v. therapy ...
- 18.11.2013
- Moving to Dubai (UAE)
- Hello, Is there a risk for our 3-year-old little boy to go off for living in Dubai? Are respiratory physiotherapists available overthere?
- 26.09.2013
- Laser dental treatment
- Is laser dental treatment (laser drill) more safe concerning the germ risk than conventional therapy with a surgical drill and saline soultion?
- 13.08.2013
- CF center care
- Hello, my daughter is followed at a certain CF center. I am in contact with other parents whose children are followed in other CF centres. We discuss together the ways how the monitoring of our children is proceeded. I realized that the monitoring of my child was not as regular as others’. Her ...
- 13.08.2013