Topics

Nasal polyps
Dear expert team, Our daughter - 3.5 years old- has been diagnosed with CF in december last year. Her main problem are nasal polyps. These have been operated in december last year (removal of a massive endonasal polyposis, preparation of a large window in the maxillary sinus with the middle nasal ...
10.10.2011
Biphosphonate therapy
Dear Sir or Madam, What does a biphosphonate therapy as a treatment for osteoporosis involve? How is this therapy performed and what are the side effects? I read that biphosponates are also used in persons with cerebral tumours… it seems to me that it is a very strong drug. Is such a therapy ...
01.09.2011
Urolithiasis: how to do to avoid it?
A great thank you, Dr Danner for your answer on urolithiasis. I forgot a question in my precedent message. What about precaution to prevent urolithiasis apparition (diet, way of life, medicine…). What are the recommendation you advise to delay/avoid lithiasis. Thank you.
14.07.2011
urolithiasis
Does Cystic fibrosis predispose to the urolithiasis occurrence ? Do patients with cystic fibrosis present urolithiasis more frequently than another people? If yes, what is the explanation?
12.07.2011
cystic fibrosis and magnesium
Hello, I am the mother of a son, 15, who has cystic fibrosis. In recent months, he has been supplemented with magnesium and vitamin B6 because tests showed a deficiency (genetic?) in the transport of Mg to the cell. A pediatrician specializing in treating children with pervasive developmental ...
21.06.2011
Connection between joint pain and menstruation?
Dear expert team, for half a year I suffer increasingly from spasmodic joint pain. I first assumed a time-connection to the intake of certain drugs, now however, I stated that those batches are especially severe at the first days of my menstruation. As I have read in the meantime, the ...
20.06.2011
Staphylococcal infection we are treating is chronic?
Thank you for a very useful Q&A! My seven-year-old complains with knee and leg pain and that she suddenly feels she cannot walk. She has CF. We do not listen to carefully, but then, I found this on the web (e-corn-cf.eu): CF-arthropathy 2) Episodic (acute) arthritis Hereby it deals in ...
05.05.2011
CF-arthropathy
Dear expert team, how can a CF-arthropathy be diagnosed in children? My daughter is 9 years old with CF and suffers a lot under joint pain, needs a rehabilitation buggy in case of long distances. Many thanks
18.04.2011
nasal polyps
To avoid the recurrence of nasal polyps a treatment with dornase alpha has been proposed to my 12 years old son who has been surgically treated for polyps 6 years ago. His pulmonary status doesn’t need the use of dornase aerosol. Thanks to tell me what is the interest of such a treatment on ...
07.04.2011
CA 125 and cystic fibrosis
Hello I wonder if CA 125 is necessarily higher when you have cystic fibrosis, due to the very thick cervical mucus. The rate of my CA 125 is currently 75. Thank you in advance for your reply.
29.03.2011
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