Topics

Pain
Hello, I am suffering from cystic fibrosis (48 years) and for a few days I have had pain in the sacroiliac joint. I take anti inflammatory drugs but pain is soothed only for a while. Can you explain what I can do? Thank you for your reply.
24.03.2011
joint pain
Dear team, My joint pain started years ago. Taking ibuprofen the pain usually disappeared after 1-3 days. This time the joint pain has been around for weeks with short interruptions only. In between it became so bad that I could hardly move, additionally, I had a fever. Due to the joint pain and ...
24.03.2011
Sleep disorders
In young CF children (2-3 yrs old), is there more sleep disorders secondary to gastrointestinal troubles?
13.01.2011
Pain
Hello, My daughter with cystic fibrosis (26 years old) has pain in all joints, she suffers a lot. The doctor of the CF centre gives her ibuprofen, but it does not relieve her a lot. Can you tell me if there is anything else to do? Thank you for your reply.
20.01.2011
Health problems
Hello, My daughter was diagnosed with cystic fibrosis in january at the age of 8 years. My problem is that she complains of headaches, sleep disturbances and belly ache every evening and the pulmonologist tells me that it has nothing to do with CF. I am worried; can these problems be related to ...
11.01.2011
Xolair (Omalizumab)
My daughter, who is 43 years old and has cystic fibrosis with severe allergy has been proposed a treatment by Xolair. Can you tell me more about it? Thank you.
06.12.2010
flixotide
Hello. I have a child with CF and my doctor recommended treatment with Flixotide. I have given two ampoules / day for 5 days but as I did not understand well, I am not sure if this was right. Then I read the prospectus and I am afraid of adverse effects on children.
13.01.2011
CF and celiac disease
Dear expert team, is there a correlation between CF and celiac disease? Would it be possible, that the bowel is damaged in an undiagnosed CF in that way, that it gets extremely hypersensitive and shows similar symptoms as celiac disease? My hope is still that in well adapted creon dosages the ...
29.11.2010
Risk of infection with CF germs in asthma
Dear expert team, I am a father with CF. My daughter has infantile bronchial asthma. Do my Pseudomonas germs have any effect on my daughter’s asthma? Many thanks for your support. Kind regards.
11.11.2010
Nasal polyps
Our child (9 years old) has nasal polyps in the right side of the nose. According to the opinion of the ENT-doctor, only in the ethmoidal sinus. The left side is free. For about half a year we are taking a cortisone containing nose spray without achieving a change of the polyps. Now an MRI is going ...
05.10.2010
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