Topics

Kluyvera ascorbata in the sputum
Hello, in my last sputum sample there were besides Staphlococcus aureus and Aspergillus fumigatus the above mentioned bacteria. My treating physician thinks that waiting would be the right decision, until the next sputum sample. The symptoms I have did not change. I never heard anything about ...
14.08.2017
PA MRGN 3/4 dealing with other people in everyday life
Dear expert team, I suffer from CF with the above mentioned germ. How to deal that status, if I am in public places? Concrete: can I visit a public swimming pool? Should I advise friends (non-CF/ "healthy") to protect themselves in case of visits at home, for some hours or overnight? Should one / ...
28.07.2017
Segniliparus rugosus infection of the lung
Is there any experience with the treatment of Segniliparus rugosus? Many thanks. Regards, B.K. [name shortened by ecorn CF]
17.07.2017
Potting plants
Dear expert team, My daughter has CF and is 4 years old. We want to pot plants in huge pots. I thought my daughter might help with that, however she shoud wear a mask. Is it really necessary? How high is the risk that she aquires problematic germs like fungi, Burkholderia cepacia.., when potting ...
17.07.2017
Lung transplantation / mycobacteria
My niece has CF, now the mycobacterium has been found ... according to the physicians she will get a lung transplantation...however the hospital is refusing to do it because of the mycobakterium. My question, which hospital would take a CF patient with mycobakteria and also do the ...
17.07.2017
Treatment recommendation for persistent Pseudomonas/Staphlococci infection
Dear team, I have received a lung transplantation (2010) and suffer from CF. For 6 months, my lung function decreases rapidly and since then, it is constantly low. Antibody tests, bronchoscopy, CT and x-ray had already been done. Only in the bronchoscopy, Pseudomonas and Staphylococci could be ...
19.05.2017
Round trip through California
Dear expert team, my daughter (19, CF), is chronically colonized with Achromobater and since February 2016 also with atypical Mycobacteria - Mycobacterium avium. This is at the moment treated under complicated circumstances (partly she doesn't tolerate the antibiotics). She will be finishing ...
13.04.2017
Haemophilus influenzae
My daughter, 1,5 years old suffers from CF and has now for the first time Haemophilus influenzae in the throat swab. Our treating CF physician regards it as a harmless germ, it is therefore not treated at the moment. I would like to have a second opinion. Of course, we do not want to give ...
17.03.2017
Discopathy at 14 years, Propionibacterium acnes, growth
Hello, Our 14-year-old teen with cystic fibrosis experienced severe back pain in May-June. He finally performed an MRI in August with this result: On the contrary, there exists in L4-L5 and L5-S1 a disc-shaped bulge with no disco-radicular conflict or a repercussion on the foramens. The bulge ...
24.02.2017
F508/5T
Hello, is it possible to have these 2 genes and have a staphylococcus aureus in a throat sampling for bronchiolitis? Because the 5T gene is a mild gene and I have never heard of Staphylococcus aureus for a patient with this combination of genes. Cordially
24.02.2017
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