Topics

Looking for mucolytic drug
For a short period of time, I cannot get the oral mycolytic drug ambroxol anymore, that I took for the last 30 years with success. Therefore I am looking for a new oral mucolytic drug. Do you have a recommendation which one to choose? F. 45 years old
28.07.2017
Sucking off mucus
In the Czech Republic, it is common, to suck off mucus in children, who are still too small to cough up their mucus themselves. I read this in the internet. Our CF center did not talk about this once. My son is 14 months old, we inhale 3 times a day with 3% saline solution plus 3 drops salbutamol. ...
17.07.2017
Drying of the inhalation device of the e-flow
I have been given a dehydrator (normally one dehydrates fruit in it) in order to dry my inhalation device of the e-flow nebulizer after cleaning. Is that sensible or is it damaging? Some CF patients seem to use this....
12.05.2017
Inhalation device
Hello, I have a question concerning my inhalation device. I am 35 years old and suffer from CF. I inhale tobramycin (Bramitop), hypertonic saline 6% - 10ml and rh-DNAse (Pulmozyme). My former device PARI BOY does not function anymore after a quite short time interval. The motor burned. Now I am ...
12.05.2017
Pregnancy and aerosol
Hello, Mum of a 20-month-old CF baby, I just learned about my new pregnancy. While waiting for a prenatal test to know if the child is affected, can I continue to administer tobramycin and colistin aerosols (and pulmozyme in the morning) alternately twice a day. Knowing that during aerosol ...
13.04.2017
Tobramycin
Are there any adverse effects with inhalative Tobramycin? If yes, what are they? Thank you for your help
30.01.2017
Pseudomonas aeruginosa and sterilization of the nebulizer
We are parents who want to know when to sterilize nebulizers ? Just before the use? Or after using and letting dry on a paper towel without active drying, in a dry and clean box? Is pseudomonas transmitted via the air? When is the best time to sterilize? Before or after using? Thank you for ...
25.11.2016
Side effects of Quinsair® (levofloxacin)
Hello, I (CF patient) have had very unpleasant side effects when using levofloxacin orally. Because of the recommendation of my physician I took it in spite of this for several days, with the result, that the moderate side effects turned to be very strong when taking it again (the foot was ...
28.09.2016
Quinsair®
Hello, could I get some information about Quinsair® (inhalation of levofloxacin)? Since when it is on the market, how, where and when is can/should be used? Best regards,
25.07.2016
Cough
Hello, My 5-year-old CF daughter has very big coughing fits when she wakes up and the rest of the day she does not almost cough. Her mattress is lifted, the physio says that it is very high (not down in lungs) and her bacteriological exam is negative. Do we have to establish particular ...
06.06.2016
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