Topics

Test question for keyword list-please ignore
This is a test question, please just ignore it
04.10.2012
moving
We are moving from Callifornia to Florida. Will the new humidity lead to the boys becoming ill on our arrival?
30.07.2012
CF
What is the life expectancy of a baby diagnosed with CF in Canada?
05.06.2012
A Friends child
I suspect that a friends 1 yr old might have CF, he is ill every week, has had a cough since he was tiny, sicks up mucus and she tells me his stools are/were greasy. The only thing that buts doubt in my mindf is he is a very healthy weigh. I have hinted and even mentioned CF once but each time ...
02.04.2012
symptoms of cf
Is it readily identifiable at birth?
30.07.2012
Class II & III muations
I am fairly new to learning about CF but have accepted the baby has this and the mutations are Class II & III. The little one is now 6 months and 2 wks old and so far the health has been excellent, not even a sllight cold. The weight gain on average is about 0.64grms per week and his CF clinic are ...
20.02.2012
Normal lifespan
My baby has deltaF508 and R1070W and is almost healthy (details are in a previous question). I found a study that shows the combination of the two mutations can lead to a normal life span. see below http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2785447/ What kind of treatment and further ...
24.01.2012
follow up the disease
My baby has deltaF508 and R1070W and is almost healthy (details are in a previous question). How do you recommend to treat the baby so that we do not tantalize with many investigations but also keep on eye on the disease. E.g. it was recommended to me to do monthy analyse of sputus, but I see ...
23.01.2012
Odd behavior of girlfriend with CF
Friendly Greetings, My girlfriend is from the USA, I am myself from The Netherlands. My girlfriend claims she has a heavy form of CF and won't make the age of 26 (currently 24 years old). Also she claims with this she needs to go to the hospital all the time and even gets hospitalized for most ...
08.06.2011
newly diagnosed patients/year
Does anyone know approximately how many newly diagnosed CF patients there are in the EU each year? Thank you
06.04.2011
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