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Topics
- neonatal screening result
- Hello! My daughter is 5 week and 2 days old at the time that I’m writing you. At the neonatal screening, the value of immunoreactive trypsin was 64.9, and at the age of 4 weeks and a half, we repeated the analysis and the value was 1024 (400 being the maximum for that age). In both cases the blood draw was made at Euroclinic, and the analysis was made by SYNLAB in Germany. By now, the weight gain was of 870 grams, she has good appetite, the stool is normal, a few times a day and the smell is not that unbearable. From time to time she has nasal secretions but they are quite compact, and I think it’s because of the humidity level of the room which is low enough. I have to purchase a room humidifier. She doesn’t sweat very much and her skin isn’t salty. Is it possible that these tests are wrong? I mention the fact that there are no cases of CF in our families. We continue the investigations, but we would like an approved opinion about these test results. Thank you and I am waiting an answer from you.
- 26.05.2011
- treatment
- Prof.Dr.Ioan Popa, my name is Maria. I have 2 sons that suffer of CF: Eugeniu 22 year old and Cristian 17 year old. My oldest son is finishing the Law School at the University of State in the Republic of Moldova and he has the occasion of attending postuniversitary studies in Timisoara with a European scholarship. I, as a mother, have great fears about his treatment there. In the present he needs hospitalization once in three months. Tell me, please, if you treat adult patients also in your Center and if my son will have to pay for the medical attendance, not being a Romanian citizen. Thank you for your answer.
- 24.05.2011
- cysic fibrosis severity clasification
- I have a 16 year old boy diagnosed in 2006 with pulmonary CF, for half a year, he coughs and he expectorates a lot at every episode during the day; he has no other problems, he is normally developed, he weighs 48 kg. What should I do? In present time he uses inhalations with Pulmozyme, he takes Kreon and vitamins; he is also infected with Pseudomonas aeruginosa. His doctor said that he will begin a study with tobramicyn, is it ok? I am desperate.
- 24.05.2011
- pulmonary emphysema
- Pulmonary emphysema is caused by the liver disorder? The ascendant pressure of the liver contributes to the increase of the bronchi, of the lungs and of the heart? Do CF patients that have billiary cirrhosis develop also pulmonary emphysema? How does pulmonary emphysema evolve? Is it treatable (how)?
- 24.05.2011
- Montelukast (Singulair®)
- Dear expert team, In “CF-Focus” (issue 4, 2006) [German publication] there was a report about a positive study with regards to the effect of Montelukast in CF. Since then, I have not heard anything about it anymore. Do you know why this promising approach has not been pursued? Best regards, M.
- 24.05.2011
- physiotherapy in CF
- I study physiotherapy and I would like to get more information concerning the newest rehabilitation methods for a 15-year-old CF child. I am mostly interested in general outline of the disease in this particular age group and the best rehabilitation methods, which are available not only in Poland. Please, send the answer to my e-mail address. Thank you for your help. K.S.
- 24.05.2011
- home near a waste disposal and treatment center
- Hello, I wanted to know if there is a health risk for a 4 months old CF child to live near a central waste treatment and landfill. thank you for your reply
- 23.05.2011
- research
- Hello Is it possible to take part, as a patient, in test of Meveol®? when?
- 23.05.2011
- Risks associated with electric diffuser of insecticides
- Hello, We are in an area where the tiger mosquito is present. Can we use electrical commercial insecticides in the presence of my daughter who is 6 months old? Is it dangerous?
- 23.05.2011
- staphylococcus aureus
- My daughter is colonized by Staphylococcus aureus and Pseudomonas aeruginosa. She finished an intravenous antibiotics course one month ago and she has already bronchial obstruction and dyspnea. If we manage to eliminate staphylococcus, will P. aeruginosa be less aggressive? Which antibiotics will you advise? Moreover, as she is infected, she suffers from joint pain and she is very tired. Thanks for your help.
- 23.05.2011
