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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
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- ventilation
Topics
- products soap bubbles and cystic fibrosis
- Hello My little girl loves to blow soap bubbles. Are the bottles sold on the market at risk of contamination with Pseudomonas aeruginosa? Or any other kind of danger? The two answers given in English on the website appear at first sight somewhat contradictory. Could you clarify your advice on the use of these bottles by children? Thanking you in advance for your lighting, Sincerely
- 11.04.2011
- Induced cough
- Hello, I am the mother of a French child of 20 months followed in France. We live in Morocco. My daughter has daily physiotherapy sessions. The respiratory therapist trained in France induces the cough reflex at least 10 to 15 times per session. Can this cause a fragility, an abnormal growth of the larynx or this anatomic area in the long term, if the gesture is repeated too much, too abrupt or poorly executed? thank you in advance Sincerely
- 11.04.2011
- newly diagnosed patients/year
- Does anyone know approximately how many newly diagnosed CF patients there are in the EU each year? Thank you
- 07.04.2011
- nasal polyps
- To avoid the recurrence of nasal polyps a treatment with dornase alpha has been proposed to my 12 years old son who has been surgically treated for polyps 6 years ago. His pulmonary status doesn’t need the use of dornase aerosol. Thanks to tell me what is the interest of such a treatment on sinuses.
- 07.04.2011
- sandbox
- My three years old daughter will soon start kindergarten, where there is a open sandbox. Is this allowed?
- 07.04.2011
- cystic fibrosis and china painting
- I am a 50 year’s old woman who had a late diagnosis of cystic fibrosis. I realize china painting for pleasure. I use as paint thinner lavender oil, orange oil… without any protection and with throat irritation. So I try to use a FPR P1 filtering half mask (called duck mask) which give me a suffocate impression. What is the degree of toxicity requiring what protection?
- 07.04.2011
- Mutations
- One year ago my 20 months old daughter had 2 sweat tests over 200! The screening test was negative at birth. She is considered and treated as CF but has no identified mutation so far ! Nevertheless, she is very symptomatic, has been colonized with Pseudomonas and is pancreatic insufficient. Is there such atypical cases? Is the diagnosis finally assessed?
- 07.04.2011
- F508del homozygous
- Hello, I have a question: my daughter has CF with the mutation F508del homozygous. Does anybody know what this says about the course of the disease?
- 07.04.2011
- Phenomenon in CF lungs
- What phenomenon happens in the lungs of a person with cystic fibrosis?
- 07.04.2011
- medicines - muscles
- Hello, I am the mother of an almost 16 years old boy with cystic fibrosis. He practices an average of 17 hours of sport per week (school and soccer in club). For a while, he often suffers from various injuries, especially contracture (thigh and back). His physio asked me to inform me whether his injuries would be of metabolic order. On whether the pancreatic enzymes he takes could be of influence ? Knowing that he only takes this treatment together with the vitamins ADEK. His muscle problems are they related to something else?? In advance thank you very much
- 07.04.2011
