ecorn-cf: App. question list

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Climate: Climate and cystic fibrosis Hello, what type of climate is most advisable for a patient with cystic fibrosis?; 24.03.2011

joint pain: Dear team, My joint pain started years ago. Taking ibuprofen the pain usually disappeared after 1-3 days. This time the joint pain has been around for weeks with short interruptions only. In between it became so bad that I could hardly move, additionally, I had a fever. Due to the joint pain and my lung situation I am having infusions at present. The lung has been much better recently but the pain hasn’t disappeared. It comes and goes – and I cannot see any connections with inflammations in the blood or specific drugs. My blood was checked regarding rheumatism, everything is fine. Now I am to get on with ibuprofen and maybe cortisone if the pain doesn’t disappear. Is there anything else I could do? Thank you very much!; 24.03.2011

Pancreas tranplantation: Because of the important part of pancreas in the disease, why do not transplant this organ?; 24.03.2011

Physiotherapy in private practice: hello, my 16 year old daughter, has CF and makes her physio 2 times a week in the private practice office, where other CF patients often have appointments at the same time. I am very worried about the risks of contamination by pseudomonas. Can she do her physio with a mask? Thank you for your reply.; 24.03.2011

Molecules and mutations: Hello Main research studies focus on personalized treatments. But could you specify if - In case of success, will Miglustat and Vx809 be effective only on f508 mutation or all class 2 mutations as d507? - Could PTC124 be effective on the New1 class mutation 1811+1,6 Kb A>G (splicing mutation and not stop codon)? - Would Vx770 be effective only on 551D mutation? Is that sure that patients with the mutation 1811+1,6 Kb A>G that allow production of some protein (even if in New1 class) would never be concern by Vx770? In general, could one say that rare mutations will never have any treatment because no studies are specifically conducted for these mutations? Many thanks for your answer.; 24.03.2011

European Center for Cystic fibrosis: Good afternoon, My name is Kristina and my brother is a CF patient. Can you give a recommendation for a Center for Cystic Fibrosis in Europe, since we are from Macedonia and there isn't any center for CF patients.; 24.03.2011

Fertility: Hello I was wondering is it possible to be fertile up to a certain age i.e 26 with CF, It's just i've noticed my sperm is different lately compared to the way it was before. Also is there many CF males able to have children naturally? Thank you. Mark; 24.03.2011

pancreatic enzymes: If a child (2 years old), is given his enzymes prior to a meal and refuses to eat what are the possible consequences ? If antibiotics are given preventively, should it be given three times daily or if once a day is just as good? Where can I get recent information on the effects of clapping twice a day? Many thanks for your answers. Dr. Linda Talbot; 24.03.2011

appendicitis/CF: What is the relation between appendicitis and CF?; 24.03.2011

CF and swimming in the sea: I have a question whether CF patients are not allowed to swim in stagnant water. And how is it with swimming in the sea?; 24.03.2011