Topics

Vitamin D
Hello, Cold you tell me how much of vitamin D (in unit) is required for a 2 years old child with CF and pancreatic insufficiency. Thank you
14.12.2010
Essential oil
Hello, I am the mother of 2 children. A 5 year old boy and a 2 year old daughter with cystic fibrosis. I am a supporter of essential oils and use them to treat (and also prevent) my son since he is 2 (because it is too strong to be in contact with the skin earlier) eather in massages (with vegetal oils) or diffusion. Can I also treat my daughter with these oils? On her skin ? By diffusion ? Thank you for your answer
09.12.2010
Transmission of fungi
I Would like to know if two CF transplanted patients could be girl and boy friends even if one takes a treatment against fungi and the other no.
09.12.2010
Moderate CF
Is moderate cystic fibrosis susceptible to deteriorate ?
09.12.2010
Sphingomonas paucimobilis
Hello, in the last throat swab of my daughter (2 years) the germ Sphingomonas paucimobilis has been found. Now she should take 2 times a day 2ml Ciprofloxacin solution 5% for 14 days. Could you please tell me, if this is a really persistent germ? Is there the hope that she gets rid of it again and how problematically it has to be regarded? Where does one get such a germ from? The center wrote to me that it is not a bad germ, but has to be treated though. Somewhere I have read that this germ belonged to the species of Pseudomonas before, but sometime has been separeated from it? Many thanks and best regards.
09.12.2010
Getting pregnant with CF
Hello, I want to know, how it is with pregnancies. I am afraid that I cannot get pregnant. I know some women, who have a child and they are doing much worse than I do. However, the fear is always there. I have stopped the pill last month, and I am waiting for the next menstruation that I can use the Clearblue fertility monitor. How difficult is it to become pregnant with this illness? In general I am doing well, except for infections in the meantime. But I am making myself completely crasy with the fear not to be able to get pregnant.! I am 21 years old, 1,60 m high and weigh 47 kg. My FEV1 lies always between 70-100%. Therefore everything is o.k. I think. And infections I only have during the winter. My friends have it harder with underweight and partly an FEV1 of only 30%! My partner is very healthy, fortunately. With the pill my menstruation has been regular. Many greetings
09.12.2010
Small body height
Dear expert team, My son has been diagnosed with CF at the age of 9 months. He has been breast-feeded until the age of 6 months. Until this point in time his body height lay exactly on the 50th percentile, his weight slightly higher on the 75th percentile. As the breast-feeding ended, he did not gain weigth anymore and also the height did not change anymore. For this reason a sweat test had been done which was positive. In general, my son does relatively well. He did not have any relevant germs until now, therefore he did not have to take a course of antibiotics so far. The therapeutical measures include only physiotherapy so far (once a week) and of course pancreatic enzymes (creon 10 000). In the meantime my son is 5 years and one month old. His height is for his age much to small with 103 cm (3rd percentile). Concerning his weight, he is one percentile higher (10th percentile). My wife is with 155cm relatively small, I am of average height with 181cm. According to the height of the parents it cannot be expected that my son will be 190cm high, but we have of course the hope that he gains a quite average height (of probably 170cm). Now to my question: We want to visit an endocrinologist, who should evaluate my son because of this. I know that CF has an influence of course on the thrift of a child, but how is it in the concrete case? As the weigth of my son is over average compared to his height, I assume that he utilizes the food relatively well. According to this there arises the question in my opinion, if the small body height can only be related to the CF. For us this is important, as we do not want to put him underneath the "torture" of daily injections of growth hormone (rhGH) if it does not help anything or only a bit. What do you think about this? Is there a chance that rhGH can have some effect in my son? Many thanks for your answer.
09.12.2010
pancreatic enzymes
What effect, if enzymes are administered to a 2 years old child who then refuses to eat. Will he suffer from abdominal pain?
09.12.2010
Life expectancy
No other site gives the same results. I am a woman of 45 years living in France, as a couple without children. I have got a mainly digestive CF with diabetes ... I'm followed up by the CF Center of X and my health is fair (with no special issues except Pseudomonas at end of 2007 since then eradicated). I'd like to evaluate the life expectancy of people with my "luck" ... and would like to know the statistics of 2010 survivors of my age! Thank you.
09.12.2010
CF and growth hormone (GH)
Hi! My 11 years-old daughter visited the endocrinologist who proposed to treat her with GH because her expected adult height will be 1.45m. Supposing she will not be again treated with itraconazole, a period responsible for a 2 years of bad weight and height gain, my question is: the CF treatment of my daughter is already important and the endocrinologist said that GH treatment was at least for 4 years with daily injections, is the GH treatment useful ? What are the side effects of this treatment ? Thanks.
09.12.2010
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