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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
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- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
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- swine flu_novel influenza
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Topics
- Haemoptysis - numbness
- Good evening! I am 23 years old and suffer from CF with df508 mutation. I have many bronchectasies and since some time ago I cough out blood every day, even in small quantities in my sputum, or on its own. The last 1,5 year something strange came up. Sometimes I cough, I have haemoptysis, even a little, and then my whole body goes numb and I feel paralyzed for 15 minutes. I do not lose consciousness, I am diabetic, but my glucose levels were normal during the “seizure”. My oxygen was down!. In general, my oxygen varies from 92-96%. Can someone tell me what may the cause of all this and how it can be treated? What kind of testing is available? My head MRI was clean.
- 18.11.2010
- allergy
- Is allergy to Aspergillus frequently associated to CF ? Is there a link with the presence of Aspergillus in sputum ? Thanks for your response
- 18.11.2010
- Achromobacter xylosoxidans
- Dear Expert Team, Is there any news in 2010 concerning the therapy options of the above mentioned bacterium wiht patients showing severe decrease in FEV1 (and otherwise only faily treatable Staphylococci in the sputum? Many thanks for your efforts.
- 18.11.2010
- Lung transplant
- If a patient undergoes lung transplant do these lungs stay clear of CF? Or is there in the long term also building up of sticky secretions?
- 15.11.2010
- Infertile
- I have two sons. We recently found out that they both have a mild form of CF. They have never been ill. My eldest son wanted children and now it seems as if he doesn’t have semen in his body. Also operatively it was impossible to obtain sperm cells. He will thus never have a child of his own. In the other son there is also no living sperm cells in his ejaculate. At present he doesn’t have a steady relationship and there has been no further testing because that would be very invasive. He had surgery several times because he had an accident. Is the chance that he is totally infertile equal for him or can’t you state it like that?
- 15.11.2010
- Gestational diabetes
- Hello, I am 29 years old and I am a young CF mother of a little girl aged 1 month. I was discovered gestational diabetes at 28 weeks, and now one month after delivery my blood sugars are still very disturbed. Gestational diabetes usually goes away quickly in mothers after delivery. Is it normal in my case that my blood sugars are still very disturbed? One month after delivery is it too early to get everything set? Or does it mean I'm definitely diabetic, whereas nothing had been detected so far? Thank you very much for your attention to my e-mail.
- 15.11.2010
- Diabetes
- Hello, I would like to know what is the treatment for CF diabetes with high values of glucose. I have heard several opinions. Insuline or oral treatment? I have been told that oral treatments are not the best for cystic fibrosis related diabetes. What do you think? Thank you.
- 15.11.2010
- Vaccination against Pseudomonas Aeruginosa
- Ladies and Gentlemen, I feel sorry that the vaccine Aerugen (Berna) has not been marketed yet, although the vaccination was successful in CF patients. Why it is not possible that grown-up CF patients decide for or against vaccination? Is this vaccine still available? How is the development of other potent vaccines in the near future? Thank you for your attention. Karin T.
- 15.11.2010
- MRSA?
- Coagulase-negative staphylococci (methilcill.resist) were detected in the sputum of my 6 year old daughter (I transcribed this – I heard it for the first time!). Now, I read in your forum that these pathogens give cause for concern. In addition to Zithromax®/acithromycine (she takes 250ml every second day) my girl has to take the antibiotic Bactrim® (Trimethoprim and Sulfamethoxazole or short: TMP-SMX) now for eight days (2 x 6ml). Does this settle the matter or do we have to expect further complications? Actually she is doing fine, she goes to school, makes a healthy impression… Is it MRSA!?!
- 15.11.2010
- Proof of genetic deficiency in parents
- Hello, My son is suspected to have CF and is currently being tested accordingly. Since my partner and I are separated, unfortunately I do not have any more detailed information on actual test results from the mother, as she has cut ties with me. I would like to ask anyway whether it is possible for one parent as well to get tested for the genetic deficiency. Is this done through a sweat test as well, or does that only work when one actually has CF? Thanks in advance.
- 15.11.2010
