Topics

Calcium in connection with antibiotics
Hello, some antibiotics (oral taking) should not be taken in connection with milk since their effect is reduced/altered by the calcium contained in the milk. This is what the package insert of the antibiotic usually says. My question now: the calcium content of milk is about 100-130 mg/l, our mineral water contains about 555mg/l. Is it therefore not advisable to switch to a mineral water with less Caclium content or does this have no influence on the effect of the antibiotics?
14.09.2010
Problems in high temperatures
Hello, do CF patients suffer from heat more strongly than "normal" healthy people, and if so, are there any particular recommendations apart from those applicable to everyone (drinking a lot, no sports outside, etc.)? Perhaps increased inhalation or something similar? Many thanks.
14.09.2010
Stenotrophomonas maltophilia
Hello, I have CF and am colonized massively with stenotrophomonas maltophilia. My lung function has not improved despite intensive therapy. They say that stenotrophomonas maltophilia is not dangerous, but everything else was ruled out as a reason for the poor lung function. How can stenotrophomonas maltophilia be treated? Thanks and kind regards.
14.09.2010
Cystic Fibrosis and pancreas
I just found out that I a am carrier of the disease. I have a 9 months old baby and I would like to know if there are any symptoms from which I can see if my baby has the disease?
14.09.2010
Liver disorders
I often hear about liver disorders in cystic fibrosis. What is this and how do they occur ?
14.09.2010
Maintenance therapy
How is the decision made whether a maintenance dosis of antibiotics is prescribed to babies and young children ? I think that this is not done routinely? Have there been studies in this area? What are the pro’s en cons of maintenance antibiotics therapy ? Why is there so little known about the correct treatment of babies ?
14.09.2010
Plastic surgery
Hello, I am 19 years old and I have CF. I am pretty petite and therefore my bust size is very small and I have been suffering from this for years. In general, is there anything to be said against having a breast augmentation done by plastic surgery for a CF individual? Thank you.
14.09.2010
Cystic Fibrosis
My daughter is 6 years old and since three years she has complaints that look a lot like cystic fibrosis. She has it the whole year through from October till July. During the summer months she has no problems whatsoever. Is it also the case that people with CF have less problems during the summer months ?
14.09.2010
CF
If you have been tested for CF as a child and this result was negative, can you then still get cystic fibrosis later on.
14.09.2010
MRI with cystic fibrosis
We were advised to do an annual MRI for our son (9 years old, CF). What are the experiences with that and is this harmful to the body? We also want to add that our son does not have any lung problems and his lung function is always good. Many thanks.
14.09.2010
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