Topics

Vitamins
Hello, I have a small question about the vitamins which my son has to take. How I have to give them to him? The vitamin K: can I put it in his feeding-bottle of chocolate because he likes not at all the taste when I give it to him with the pipette? The uvedose® [vitamin D]: it is a bulb to be drunk. How may I give to him? May I mix it to anything in the feeding-bottle to be drunk or with chocolate? Cordially
25.11.2014
contamination by pseudomonas aeruginosa and other bacteria
My child has cystic fibrosis. Therefore we are aware of the rules of hygiene to reduce the risk of contamination by Pseudomonas aeruginosa and other bacteria. Despite the literature on this subject, I have some questions: 1 / can the pyo grow in wet hair? (I have long, thick hair and after showering they stay wet for a long time and carrying my child in his arms, his face is often in contact with my hair) 2 / do we have to avoid indoor plants even if we ensure that there is no stagnant water? (I have 8 plants in an area of 25m2) 3 / after breastfeeding my baby, I do not rinse my nipple, could it also be a source of contamination? 4 / are sanitizers products based on essential oils really effective? 5 / does our heated between 24 and 28 degrees celsius house promote bacterial growth? Thank you
25.11.2014
nasal polyposis
My 15-year-old son presents a worsening of his polyposis. He's treated by rh-DNAse via mask for his chronic sinusitis, tobramycin inhalation and colimycine inhalation in alternation one every 2 months because of a chronic colonization of Pseudomonas and azithromycin and nasal cortisone spray. Since this summer he is very embarrassed by an obstruction of the left nostril which seems to be due to a polyp and this in spite of the increase of the nasal cortisone spray (4 times per day). He has a cure of cortancyl® [prednisone] (1mg / kg / day during 7 days) which made decrease the polyp, but since stopping the cortancyl®, the sensation of nasal obstruction reappears. Is there only the surgery to overcome this polyp? And how long?
25.11.2014
Journeys abroad
Hello we are planning to leave to Kenya and Ireland next year (one week for every place) with our five-year-old CF girl. Are these places problematic? Thank you!
25.11.2014
CREON ®
Hello, CREON ® has to be taken at the beginning of meal. I have just read that it is recommended to take it with an acid food (example 1 spoon of compote). Is it exact? Why? Thank you in advance.
25.11.2014
Working in the archives
Hello, I found a job that typically involves storing and fetching documents stored in a building and I want to know if there is a risk in terms of dust and moisture possibly due to floods in june 2010? Kind regards,
25.11.2014
Pseudomonas and Aspergillosis
My 19 years old daughter has been recently treated with IV antibiotics for the first time for Pseudomonas primo-infection. At the end of the antibiotic treatment, she was diagnosed with aspergillosis (presumably ABPA) with high IgE levels (1500). After intitiating treatment with oral steroids, IgE went down to 1000 Ui/l. I have the following questions: -Is there a risk of ABPA flare when decreasing the dosage of oral steroids? -Is there a risk of recurrent Pseudomonas infection? Do steroids promote infection (my daughter has increased sputum production these days)
25.11.2014
Correctors and germs
Dear expert team, supposed one of the new drug combinations e.g. by Vertex would be suited for a correction of the homozygous Fdel508 defect, would encourage the cells to take up their tasks to at least 10% until e.g. 40%, and would result in a similar improvement concerning FEV1 and anti-inflammation as Ivacaftor® does for the so-called celtic mutation. Then what about lungs/respiratory tracts colonized with germs? Less mucus and accordingly more "normal" function = degradation of germs and/or fewer new infections? Or will the problem of the destroyed tissue remain due to the initial exposure?
25.11.2014
Mutation 1717 1G-A homozygous
Dear expert team, our son has the above mutation. Are there possibly any insights in the context of a study by Vertex or others? Which class does this mutation belong to definitively (since I’ve seen it assigned to various classes), and if it is a splice mutation, what does that mean? Your answer will be greatly appreciated. Many thanks in advance and kind regards.
25.11.2014
Pseudomonas aeruginosa with excessive mucus formation
Dear expert team, due to an infection with a strongly mucus-forming pseudomonas, the last two times I was in hospital for 5 weeks for an i.v. therapy with two antibiotics (Fortam®/ceftazidime & Amikin®/amikacin; colistin & Ciproxin®/ciprofloxacin). Both times, after 10 days, a resistance and fever developed, and I had to start over again with a different antibiotic for 14 days. After the 5 weeks, however, I still had a lot of secretion and cough, and it only got better after about 3 months of inhalation therapy alternating between Cayston®/aztreonam and colistin. I also have allergic asthma and am taking 10mg prednisone. My FEV1 was still at 52% a year ago and is now at 35%. I am 52 years old and have only needed five i.v. therapies so far. Is a prophylactic i.v. antibiotic therapy advisable under these circumstances, or would I then have to reckon with fever and a longer-term hospitalization again? How could that be avoided? I read that there are antibiotics that inhibit communication with each other; which ones would that be? Many thanks for your help.
25.11.2014
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