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Prescription/Repair of Pari-Nebulizer

Question
My daughter has been inhaling for 4 years now with the Pari-Master nebulizer, which did suddenly not work anymore during an inhalation (probably the motor is broken). Therefore I wanted to get the nebulizer repaired, I got a prescription for the repair and brought the nebulizer to the pharmacy. Today, I got a phone call back from the pharmacy that the health insurance (IKK) as a general rule does not pay any repairs anymore, but only prescriptions for new nebulizers up to an amount of 154,91 Euro. The price of the Pari-Master nebulizer, however, is 455,83 Euro, will say that most of the amount has to be paid by us. As on the one hand it is not my fault to have a child suffering from CF and for that reason it is impossible for me to work more than I do at the moment and on the other hand my child needs the inhalation therapy urgently, I am thinking of taking action against the health insurance. In this case I see a discrimination of disabled people (the ones who are of good health do not need to inhale—we don’t do it for our pleasure). How do other families cope with that? Do all CF patients pay their nebulizers by themselves?
Many thanks for your answer
Answer
Hello,
in this case it makes sense to protest against the refusal of the reimbursement of costs. In the letter of appeal it should be explained that because of the illness it is necessary to inhale several times a day, that it is necessary to inhale with the stronger Pari-master (instead of Pari-boy) and that it is impossible to repair the former nebulizer anymore because of its age. It makes sense to send a medical certification about the necessity and the frequency of the daily inhalations. In case the appeal will be not accepted, will say a new nebulizer is paid, one should think about taking action against the health insurance. In this case the legal advice of “mukoviszidose e.V./Germany” could be helpful (contact the offices/ Mrs. Kratzas: AKaratzas@muko.info).
Yours sincerely
Gabi Becker
22.11.2007