Topics

Playground?
As the children grow up their need to socialize grows as well. What happens when the birthday party of her best friend takes place in a (indoor) playground? What must I keep in mind?
12.05.2014
Wet home
Hello, I have a little 5-year-old boy with cystic fibrosis, this summer we want to go on holiday next to Pornic (44) where my grandparents have a small house but we sleep in the bungalow (it’s an old garage). They live 50 meters from the sea, the bungalow is wet, they put regular anti-humidity ...
12.05.2014
SPA and cystic fibrosis
Hello, I am 33 years old and I have CF and I would like to buy a SPA to put in my garden, I wanted to know if there was an indication against. If there is not, what product to treat water is the best: bromine, chlorine etc.? Thank you.
12.05.2014
Swimming with Pseudomonas
Dear ladies and gentlemen, can a CF patient go swimming in a pool if he has Pseudomonas? Thanks and best regards,
15.04.2014
Swimming
My son (aged 7) is due to start swimming with school in January. The pool used by the school is not chlorinated but the water is cleaned by ultra-violet light. Would this pose any infection risk for someone with CF? Thank you.
08.04.2014
hot tubs, jacuzzi, spa baths
We need to explain to friends why our grandsons (11 and 14) are not allowed to go into hot tubs, jacuzzis, spa baths etc. Please could you recommend research documents (if any) or any written material to help us put this danger to our grandsons over clearly to anyone who may have care for ...
24.03.2014
Rivers & CF
How high are the risks & what are precautions we should take with a toddler cfer and playing in a river? Specifically the Guadalupe/Comal? High vs low?
24.03.2014
Differences between CF Centres
Hello Will there one day be a "consensus" between CF Centers? Indeed through testimonials from parents of CF children it’s noticable that each CF Center allows or prohibits some activities or travel. Opinions may even differ in a given CF Center ... Why has one child the right to go to Tunisia ...
24.03.2014
hot tubs, jacuzzi, spa baths
Could I get recent publications/research on the use of hot tubs etc for cf teenagers please?
24.03.2014
Stagnant water?
Dear expert team, the grandparents of our daughter (2.5 years old, CF) spend their summer holiday every year at the Lake Constance. This year they would like to invite our daughter to go with them there. They both want to calm our worries concernig swimming lake and Pseudmonas danger with the ...
17.02.2014
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