Topics

Bath tub with whirlpool function
Dear expert team, due to an upcoming renovation of the bathroom I (25, CF, Pseudomonas negative) am thinking about bying a bath tub with whirlpool function. I know, that public whirlpools / jacuzzis are not recommended due to an increased risk of Pseudmonas. Is this danger relevant also for ...
09.04.2013
baby gym
Hello, I have a 12-month-old girl with cystic fibrosis. Can I register her on babygym? I know that it is good for the development but I don’t know if I shall wait before meeting her many other infants (especially in winter)? Should she begin later? Thank you.
04.03.2013
Pseudomonas and hygiene
Dear expert team, I know, that similar questions have already been asked several times before, in spite of this, I as a mother of a 15 year-old girl with CF, am again and again insecure when reading the newest recommendations concerning hygiene in daily life. We have again a positive finding of ...
04.03.2013
parachute jump
One of my patients who presents a respiratory failure (FEV1 between 22 and 31%), with hypoxemia and hypercapnia has received for his birthday a parachute jump. He was dreaming about it since a long time. He needs a medical certificate. I think it is not reasonable because of situation fragility to ...
04.03.2013
outdside games
Hello, Are public parks (slide, swing, etc) not recommended for children with cystic fibrosis? Thanks
04.03.2013
Are swimming pools an unnecessary risk after all?
Dear ECORN experts, It seems to be a common view that swimming in well maintained indoor pools is safe for people with CF but I'm starting to wonder if this really is so? I have discontinued my son's swimming lessons because he regularly had both staphylococcal and fungal infections in his ...
28.02.2013
stroll
Hello, My son is 7 months old and has cystic fibrosis. I love going for walks. But I wonder if there is weather to avoid: Rain, fog? Or a good walk is always good to take? Thank you very much!
18.02.2013
Snow
Hello, Is snow dangerous for people with cystic fibrosis? (in the sense that it can represent a large reservoir of stagnant water) Thank you.
04.02.2013
Pseudomonas and wind instruments
My daughter would like to learn one of the following instruments: flute (German flute), saxophone, clarinet, horn, trumpet. We are worried that a water bug (Pseudomonas) could colonize the instrument since these instruments cannot be cleaned very well. Is one of the instruments more suitable than ...
04.02.2013
Swimming in pools
Since a year ago my child swims in an open pool all year long. Recently they started covering the pool with isothermic blankets (they spread them at night and roll them in at noon). Could this cause any trouble for my child? Need I pay any attention?
22.01.2013
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