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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Saliva in cystic fibrosis
- Hello, For quite some time I am interested to learn why the saliva in CF isn’t more viscous than in healthy persons? Is its composition, amount and viscosity normal compared to the saliva of healthy persons or are there differences? According to Wikipedia the saliva contains the digestive ...
- 09.07.2013
- vitamins
- Hello, should we take vitamins (ADEK) before breakfast or during it? Thank you.
- 08.07.2013
- How likely is the diagnosis of CF?
- Hello, I write here as I am nearly turning crazy because of the fear about my newborn daughter. It is like this that she has been born 2 weeks before the calculated birth date via cesarian section, everything looked fine. However, she did not evacuate the meconium. She had an ileus (meconium ...
- 01.07.2013
- Impossible to make her eat
- Hello, the girl of my brother who is 1 year and 1 month has cystic fibrosis, diagnosed at one month of age, and since this time she follows the necessary treatment, but unfortunately for at least two months she refuses to eat . The doctors have performed all the necessary examinations, but they ...
- 15.05.2013
- Elastase: two different results
- Hello, My 12-month-old son had last month an elastase assay which showed a moderate exocrine pancreatic insufficiency. 15 days later, a new analysis indicates that there is no failure. Which value should we believe? The only difference between the two tests is the type of diet. Can it affect ...
- 13.05.2013
- Bronchitol® benefit
- Bronchitol® is proposed to CF patients. Is the treatment added to inhaled hypertonic saline serum/ inhalation with salbutamole or does it subsitue the treatment? What about differences between lipromatase and CREON®?
- 13.05.2013
- Elastase
- Hello, Because having a cyst for many years that compresses the pancreatic duct, the gastroenterologist did an analysis of elastase. The result is 543 mg /g. Should we be worried about this or is it just normal? I saw that above 200 = normal subject, but with my 543 = am I wrong?
- 07.05.2013
- Extremely distended belly
- Dear expert team, anew I count on your knowledge and possible hints how we can improve the health condition of our daughter (21 months old, CF with F508del and R553X, severe pancreatic insufficiency). The problem is, that all attempts to cope with the extremely distended belly of our daughter ...
- 19.04.2013
- Belly
- I have a question, I (16) have per se already a big belly (respectively a bit a big one) due to CF and diabetes. However, now it gets worse, I have quite much air in it.... as it turs out to be worse and worse with the belly (thus bigger and all) this bothers me a lot...can one do something about ...
- 16.04.2013
- Gastric problem
- Hello, My daughter has always stomach problems that have worsened recently. I wonder if an infection in the esophagus (examination in progress) may cause a decrease in breathing because antibiotic treatments for her lungs turn out to be not effective anymore. Thank you.
- 26.03.2013
