Topics

Pancreatic insufficiency without steatorrhea or other symptom
Hello, my child was recently diagnosed with CF and pancreatic insufficiency (pancreatase < 50) at age 12. He used to exhibit the symptoms described for pancreatic insufficiency (fatty and many stools, smelly flatulence, tummy aches etc) to some degree until four years ago, but upon regular ...
24.03.2014
Strongly increased fat excretion of our son (4y)
Dear expert team, in the frame of two stool fat collections an increased excretion of fat (up to 45%) has been diagnosed. More than one year ago, this value was however much lower. We ask ourselves, if such a deterioration is "normal". Our son "chews" the Kreon always 2-3 times, before he ...
16.02.2014
Anal prolapse
Dear expert team, our daughter has CF and takes Kreon at hear meals! She has frequently an anal prolapse when having bowel movements (we have been told that this would be normal in CF and not serious, if it involutes spontaneously) - which is the case. She is otherwise not taking anything else ...
10.02.2014
Fat Diet
Hello, I am mother of a little boy with Cystic Fibrosis. I was just wondering if eating so fat could not be bad for his health. Indeed, to date there are only a few adults with cystic fibrosis so they are not affected by cholesterol, clogged arteries ... (what happens when you eat too much ...
03.02.2014
Linaclotid in case of DIOS, recurrent subileus + addendum to linaclotid question
Original question "Linaclotid in case of DIOS, recurrent subileus etc" from 26.11.13 ----------------------------- Dear expert team, I (47, CF) have been prescribed today linaclotid from a specialized center for gastro-enterology, as I frequently suffer from DIOS, recurrent conditions of ...
03.02.2014
Delical® (food supplements for enrichment in calories and/or proteins)
Hello I' ashamed to ask this question but I really thought I had another box. Actually, no: I will be not able to give him today [his food supplements] because it's sunday. Is it serious??? Expected response. I feel bad for my neglect, but I was so sure! cordially
16.12.2013
Milk and milk derivatives
Hello, for a child with high sputum production, is it better to avoid or to forbid cow's milk and its derivatives (cheese - yogurt). I've heard that it promotes the production of mucus. Thank you for your reply
09.12.2013
Cystic Fibrosis
Hello, after a pancreatitis, my 10- year-old son has been diagnosed with cystic fibrosis. He never had bronchitis. Sweat tests values are 55 and 50. The N1303K mutation was identified. His lungs, will they necessarily be damaged? Can people live with pancreatic insufficiency? Thank you very much ...
09.12.2013
Well-being and food
Hello, I'm currently a dietetics student ("BTS") and I have to accomplish a personal study. Awared by TV spots and by a first research during my senior year, I have chosen Cystic Fibrosis for my subject of study. I would like to know if food has an impact on the well-being of CF people? Thank ...
09.12.2013
Antibiotics in chicken - nutritional recommendation
Dear editors, one reads again and again in the press that chicken (and also turkey) are filled up with antibiotics. As we as CF patients are indeed dependent on antibiotics in a special way, the following question comes to my mind: are CF patients allowed to eat chicken etc. at all, as they ...
18.11.2013
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