Topics

Chloramphenicol in enzyme compounds
[Please note that this question was originally submitted in Germany; both question and answer therefore refer to the German production context of Creon®.] Hello, We just recently learned that our 2.5-year-old son has cystic fibrosis. He had severe pneumonia in the summer and due to the ...
22.10.2013
Paleness
Dear expert team, My daughter is 8 years old and has CF (F508 del homozygous). Her oxygen saturation and lung function are good, and everything else has also been okay so far. She is very pale, so that after a picture was taken of her recently, she said she looked like a vampire. What can I ...
22.10.2013
fruits and vegetables
Hello, how well do I have to clean the fruits and vegetables to avoid contact with germs at risk? Is it possible to wash them with chlorinated water and in which concentration? We will soon start food diversification of our baby with cystic fibrosis and we would like to prepare his meals, but ...
21.10.2013
Salads in bag
Hello We ask a question about salads in bags in which there is always a little stagnant humidity especially in a plant environment. Do you think it is possible that the Pseudomonas aeruginosa proliferates there and we have to, by precautionary measure, favor whole salads to prepare? Thank you  ...
30.09.2013
protein breakdown
Hello, My 17-month-old daughter has CF. She is fine. No airway problems and she grows well. She has a weight above average (11 kg). She eats well. 4 times a day she gets 4 spoons of pancreatic enzymes (20 000 units each time). Sometimes I smell a rotting odor in her regurgitations. I did ...
26.09.2013
Taking antibiotics
Hello, I am the father of a child who has cystic fibrosis. I've read that taking vitamins should be rather after swallowing pancreatic enzymes. What about antibiotics? Is it better, is it more effective if taken after swallowing the CREON? Thank you very much.
26.09.2013
Premature baby and meconium plug
I gave birth to twin boys at 28 weeks of gestation. After 23 days twin B was submitted to surgery due to meconium ileus. He was fed through IV for two months. He presented with severe cholestasis, which he overcame after two months. 5 days ago we did an ultrasound investigation and he had ...
12.09.2013
Diagnosis cystic fibrosis in case of long-lasting irritable colon?
Hello, I am 26 years old, female and have since about 8 years strong and increasing complaints concerning the digestion. These are getting more and more worse and express themselves in chronic obstipation, which is hard to treat inspite of the use of Macrogol and MCP (Metoclopramid) and I have ...
15.08.2013
Side effects?
Hello dear experts, My son (3,5 years old) has had two positive sweat tests; a gene test is still outstanding. We have been given Creon® (pancrelipase) and multivitamins, which I think are quite effective. Since our son has been taking both, he does not want to go to sleep, has become almost ...
13.08.2013
Body fat scale
Dear Sir or Madam, My body fat was determined in the gym by using a body fat scale with handle electrodes (fat < 9%, muscle mass about 43%). This measurement is said to be not very exact. Is is possible that in CF individuals additional measuring errors can occur due to the for sure altered ...
12.08.2013
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