Topics

nutritional supplements
I have a grandson 8 years with cystic fibrosis. When it prevail problems with the pancreas. Would it just be given a dietary supplement okra pepsin Eze [ment here the herbal preparation Okra Pepsin E3] for clearing the accumulated mucus? Thank you.
31.07.2013
Anti-reflux
Hello. We have a child who has cystic fibrosis and we would like to know if the anti-reflux medications, from a general point of view, were unsuitable for them? I'm not an expert but it seems to me that these drugs are designed with the aim to "stuff" and therefore they could harm the ...
15.07.2013
Saliva in cystic fibrosis
Hello, For quite some time I am interested to learn why the saliva in CF isn’t more viscous than in healthy persons? Is its composition, amount and viscosity normal compared to the saliva of healthy persons or are there differences? According to Wikipedia the saliva contains the digestive ...
09.07.2013
vitamins
Hello, should we take vitamins (ADEK) before breakfast or during it? Thank you.
08.07.2013
How likely is the diagnosis of CF?
Hello, I write here as I am nearly turning crazy because of the fear about my newborn daughter. It is like this that she has been born 2 weeks before the calculated birth date via cesarian section, everything looked fine. However, she did not evacuate the meconium. She had an ileus (meconium ...
01.07.2013
Impossible to make her eat
Hello, the girl of my brother who is 1 year and 1 month has cystic fibrosis, diagnosed at one month of age, and since this time she follows the necessary treatment, but unfortunately for at least two months she refuses to eat . The doctors have performed all the necessary examinations, but they ...
15.05.2013
Elastase: two different results
Hello, My 12-month-old son had last month an elastase assay which showed a moderate exocrine pancreatic insufficiency. 15 days later, a new analysis indicates that there is no failure. Which value should we believe? The only difference between the two tests is the type of diet. Can it affect ...
13.05.2013
Bronchitol® benefit
Bronchitol® is proposed to CF patients. Is the treatment added to inhaled hypertonic saline serum/ inhalation with salbutamole or does it subsitue the treatment? What about differences between lipromatase and CREON®?
13.05.2013
Elastase
Hello, Because having a cyst for many years that compresses the pancreatic duct, the gastroenterologist did an analysis of elastase. The result is 543 mg /g. Should we be worried about this or is it just normal? I saw that above 200 = normal subject, but with my 543 = am I wrong?
07.05.2013
Extremely distended belly
Dear expert team, anew I count on your knowledge and possible hints how we can improve the health condition of our daughter (21 months old, CF with F508del and R553X, severe pancreatic insufficiency). The problem is, that all attempts to cope with the extremely distended belly of our daughter ...
19.04.2013
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