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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Belly
- I have a question, I (16) have per se already a big belly (respectively a bit a big one) due to CF and diabetes. However, now it gets worse, I have quite much air in it.... as it turs out to be worse and worse with the belly (thus bigger and all) this bothers me a lot...can one do something about ...
- 16.04.2013
- Gastric problem
- Hello, My daughter has always stomach problems that have worsened recently. I wonder if an infection in the esophagus (examination in progress) may cause a decrease in breathing because antibiotic treatments for her lungs turn out to be not effective anymore. Thank you.
- 26.03.2013
- KALYDECO®
- KALYDECO® is beneficial for the mutation G551D and some other mutations causing the same problem. I read that the KALYDECO® would neutralize gastric acidity. Am I to understand that this positive effect would apply also to the G551D mutation (and similar mutations) or probably to all patients ...
- 26.03.2013
- Pulmozyme® Abdominal Pain
- When my daughter does her breathing treatment with Pulmozyme® (active agent rhDNAse) she gets bad stomach pain. She doubles over in pain and it is hard to watch. When the Pulmozyme® is done it goes away. This happens every day, and I am just at a loss. She is crying and miserable. We use a ...
- 25.03.2013
- Symbioflor® - recommendable or not?
- Hello, for years I have problems with digestion after antibiotic therapies. A bacterial mis-colonization has been diagnosed several times, after the intake of Xifaxan® (substance rifaximin) the complaints were always much better. Unfortunately, I get the prescription for this only, if I have ...
- 25.03.2013
- Abdominal pain
- Hello, My 6-year-old daughter with cystic fibrosis, complains of very strong abdominal pain. Nothing to x-ray, nothing in the stools and pancreatic enzyme dose has been changed several times .. How con one relieve it??? Thank you because we don’t know what to do.
- 14.03.2013
- Mould in nuts
- Dear experts, Is it possible that swallowing mouldy tasting nuts leads to an allergic reaction in the lungs of a CF patient (who also had ABPA (allergic bronchopulmonary aspergillosis) before)? Thanks for your answer.
- 22.01.2013
- School Canteen
- Hello, My daughter will start kindergarten in September. She has Cystic Fibrosis. I work and my daughter will go to the canteen and then I wondered if the canteen meals were adequate (Calories, fats and salt). If not, are packed lunches as those that already exist for children with allergy, a ...
- 22.01.2013
- tap water
- Hello, I am the mother of a little boy with cystic fibrosis and I am surprised it is not forbidden to drink tap water. My CF center tells me that there is no problem [translators comment: this question is from France, so the information is about the state of French tap water] but I'm stumped ...
- 21.01.2013
- High-dose i.v. therapy with vitamin C (7.5g)
- Dear expert team, Due to frequent infections (CF patient, 50 years old), my doctor suggested a high-dose vitamin C i.v. therapy (twice a week) in addition to taking antibiotics. This is supposed to strengthen the immune system as a supportive therapy. I am now wondering whether this makes ...
- 15.01.2013