Topics

Class II & III muations
I am fairly new to learning about CF but have accepted the baby has this and the mutations are Class II & III. The little one is now 6 months and 2 wks old and so far the health has been excellent, not even a slight cold. The weight gain on average is about 0.64grms per week and his CF clinic are ...
22.03.2012
oesophageal pain (2)
Hello, I would like to thank you at first for your answer to my question “Acute oesophageal pain”. Following this pain, endoscopy was recently performed for my 14-year old CF daughter by the Professor of CRCM. This endoscopy has diagnosed an opened cardia, an oesophageal reflux, responsible ...
28.02.2012
distal intestinal obstruction
My mother has had a diarrhea and subsequently a sub occlusion. She is now very tired. Is it a frequent event ?
27.02.2012
ADEK and vitamins for pancreatic sufficient patients
Pancreatic sufficient patients with CF should take ADEK and vitamins suppliments? My baby has deltaF508 and R1070W and is almost healthy (details are in a previous question). Thank you.
27.02.2012
Steatorrhoea and elastase
Hello, My little 3 year old daughter has a high steatorrhoea but a normal faecal elastase. How can we explain this? I thought that one without the other is impossible. She is treated with Creon and I was told that she has a pancreatic insufficiency but I thought that in this case faecal ...
14.02.2012
Progress of CF, stomachache & physiotherapy
I follow all the instructions, but I do not know if the physiotherapy I do to my child is enough or correct. What are the symptoms before the health of my child is severely affected? Is it true that stomachaches is a major symptom? It does not happen often and I am not sure if it truly happens, or ...
20.01.2012
Acute oesophageal pain
Hello, My daughter who is 14 often complains about severe pain of the lower esophagus that lasts a few minutes. The pain is sudden and without warning signs, its intensity is such that she can not breathe well as if she received a shot in the stomach. It lasts a few minutes. The occurrence of this ...
10.01.2012
Vitamin D
Which value of vitamin D is recommended for CF individuals?
23.12.2011
underweight
My daughter is 6 years old and her weight is 13,5 kg/100 cm. Where can I find a good doctor?
01.12.2011
Creon
How should one start a treatment with pancreatic enzymes ? What parameters to use? Do you only need to take it when you eat fat or also with other foods (vegetables/fruits) so that they are also absorbed better?
01.12.2011
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