Topics

Frequent stomach ache (underbelly)
Hello, my daughter (12 years old, CF) keeps having stomach aches in the underbelly, at times severe. She has the feeling that the stool “pushes” and that she has to go to the toilet repeatedly, although the pain rather gets worse afterwards. Quiet, distraction with positive things (e.g. ...
02.05.2012
Vitamin D and vitamin A substitution
My vitamin D value is 40ng/ml, I take 1000 I.U. cholecalciferol daily. The normal range for vitamin D is up to 100ng/ml; should I aim for a higher value? My vitamin A value is 39µg/dl, normal range 30-70 µg/dl, should I supplement vitamin A?
24.04.2012
Faecal elastase
Hello, Whereas previously the fecal elastase of my 3yr old daughter was normal (greater than 200), the last test shows a significant drop of elastase with a level of 57 like a severe pancreatic insufficiency. Is this result irreversible? Could the elastase return normal? is Creon enough to ...
24.04.2012
No kreon despite cystic fibrosis
Dear Sir or Madam, I (female, 24 years old, CF) have not taken kreon for about two years. I am 160cm tall and my weight is 53kg (stable) and I do not have abdominal pain at all and bowel movement is well. My doctor is not happy about it [that she is not taking kreon] but I do not see the ...
17.04.2012
Orthomol®
Hello, Friends recommended me "Orthomol immun®" for strenghtening the immune system. Is this product an alternative to vitamin products? Or can it be taken in addition to these? I know that it is pretty expensive but if it helps…
22.03.2012
gastrojejunostomy
Hello, my 5 month old daughter has a naso duodenal tube since mid December (at first naso gastric), because she had a low growth, while taking weight, now the doctors discuss about gastrojejunostomy while her weight for height ratio is good, 5.200kg for 58 cm, I would like to know what are the ...
22.03.2012
Kreon and pancreatic sufficiency
Our child is a heterozygot for deltaF508 and R1070W, with minimum clinical manifestation so far (pancreatic sufficiency, no pulmonary complications, just episodes of severe dehydration). At 3 years of age he weighs 15 kg and is 102 cm tall, he has solid, normal stools. He never recieved Kreon or ...
22.03.2012
Class II & III muations
I am fairly new to learning about CF but have accepted the baby has this and the mutations are Class II & III. The little one is now 6 months and 2 wks old and so far the health has been excellent, not even a slight cold. The weight gain on average is about 0.64grms per week and his CF clinic are ...
22.03.2012
oesophageal pain (2)
Hello, I would like to thank you at first for your answer to my question “Acute oesophageal pain”. Following this pain, endoscopy was recently performed for my 14-year old CF daughter by the Professor of CRCM. This endoscopy has diagnosed an opened cardia, an oesophageal reflux, responsible ...
28.02.2012
distal intestinal obstruction
My mother has had a diarrhea and subsequently a sub occlusion. She is now very tired. Is it a frequent event ?
27.02.2012
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