Topics

tap water
Hello, I am the mother of a little boy with cystic fibrosis and I am surprised it is not forbidden to drink tap water. My CF center tells me that there is no problem [translators comment: this question is from France, so the information is about the state of French tap water] but I'm stumped ...
21.01.2013
High-dose i.v. therapy with vitamin C (7.5g)
Dear expert team, Due to frequent infections (CF patient, 50 years old), my doctor suggested a high-dose vitamin C i.v. therapy (twice a week) in addition to taking antibiotics. This is supposed to strengthen the immune system as a supportive therapy. I am now wondering whether this makes ...
15.01.2013
ions exchange
Hello, my daughter (10 years, suffering from cystic fibrosis) was found during a visit to the emergency (tarchycardia, low grade fever, loss of sight - she saw only black and red, weakness, tremors of the limbs) to have an abnormally low potassium in the blood. Everything was back to normal after ...
14.01.2013
Cause of cough?
Dear expert team, my son (CF, 4 years old, 1.07m, 16.5kg, mild progression so far) rarely coughs when he does not have infections, only during strong physical action and sometimes after inhalation. For some time now, he has also been having a continuous cough (dry nervous cough) that starts ...
13.12.2012
CF related Liver disease, Lycopene and Vitamin E
Dear Expert, I'm a father to a 7years old boy with CF. Recently, a CF related Liver disease was diagnosed (by ultrasound and elevated liver enzymes in the blood). It was also discovered that his Vitamin E level is higher than normal 33mg/L. Can the high level of Vitamin E affect the Liver ...
30.10.2012
Coconut oil
Hello, I heard that coconut oil is particularly healthy, even against fungi, bacteria, etc. As such, wouldn’t it be suited for people with CF? Are there any concerns about cholesterol, as coconut oil is supposed to increase the cholesterol level? Would it be advisable to substitute coconut oil ...
29.10.2012
Feeding difficulties
Hello, my daughter is 22 months and she is in full opposition to food. If we listened to her, she would eat only yogurt, stewed fruit or bottles of milk. What should I do? Let her eat what she wants? Go to bed without eating, is it dangerous for her? We are quite worried. In addition, she has to ...
25.09.2012
Salt tablets
Hello, When my son (CF, 14 years old, 1.63m and 48.7 kg) pushes himself too hard during exercising in the summer, he becomes pale in the face and complains about nausea. We were recommended salt tablets. On the internet, athletes say that those tablets are not very easily digestible and that ...
02.08.2012
Loss of vitamins due to blending of selfmade smoothies
I (CF, pancreas insufficiency, much sport) pay a lot attention to my nutrition. However, as I have hardly any appetite on “real” food during the summer, I live preferably on self-made smoothies. My favorites are: 500ml certified raw milk, 1 banana, ½ mango, ¼ pineapple or apricots (about ...
02.08.2012
Vitamin D3
Hello, Due to a low vitamin D level (17,7ug/l, the recommended value would be 20), my doctor has ordered me (43 years old) to take vitamin D (8 dr.) in addition to the multivitamins I take in the mornings. However, during the time I take the drops, I get cramps in the fingers and toes as well as ...
01.08.2012
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