Topics

Hygiene
2 patients aged 9 and 13 will attend the same gym but will not be in the same classes. The question is: should we pass a surface disinfectant on the beams and rigging they have used after every session? One girl is chronically colonized by Staph aureus and X maltophilia, the other by Staphylococcus ...
29.07.2013
CF children
Hello How can two CF children meet, aged respectively 9 months and 3 years? And what are the precautions? Thanks
10.04.2013
Avoid sick people
Hello, Our 7 months old son has Cystic Fibrosis and in times of epidemic influenza, colds and gastro-enteritis, we were advised to avoid our son contact with sick people. To what extent should we consider this advice? Should we refuse to invite people with colds? Should we invite them but they put ...
26.03.2013
Preparation for school
All children when they go to school for the first time have to adapt and come in contact with many infections. Is it true that in their first year at school they come across a virus every 15 days? Do the children with CF produce antibodies, or is it always for them like the first year? Is it an ...
25.03.2013
Cross infection and CF centre
Hello, we ask ourselves about the CF centre and hygiene during the visits. 1 - In fact, our children go from room to room, in the hallways, intersect with other children with or without mask, while in some countries the patients remain in a room and it is the staff who moves in a specific order ...
28.02.2013
Individualized education plan (IEP) at school
Hello. My daughter starts school in September. I've asked the CF centre following my daughter if it was possible to make an IEP with them. They replied that there were no need to write one and a certificate for medicines and prescriptions would be sufficient. I'm a little stressed by this ...
28.02.2013
Cross infection Pseudomonas aeruginosa
Hello I am afraid of my daughter catching a pseudomonas infection in our cystic fibrosis center. The policy at the clinic does not separate patients with pseudomonas from patients without pseudomonas. Is this ok and what is recommended on other clinics? A concerned parent
18.02.2013
School Canteen
Hello, My daughter will start kindergarten in September. She has Cystic Fibrosis. I work and my daughter will go to the canteen and then I wondered if the canteen meals were adequate (Calories, fats and salt). If not, are packed lunches as those that already exist for children with allergy, a ...
22.01.2013
Going to kindergarten or school with MRSA?
Hello, My son (CF) is 25 months old now and has been MRSA positive again and again since he was 3 months old. There have been several eradication attempts, various iv therapies, antibiotics inhalation, and continuous oral therapy with co-trimoxazole. He is then negative for a few months and ...
15.01.2013
Great concern – requesting an answer
Dear expert team, A friend of mine has CF. She now has the following germs in her sputum: high counts of Pseudomonas fluorescens, Burkh. gladioli, Enterobacter, Candida albicans, and masses of Haemophilus parainfluenzae. The Burkh. gladioli had been detected often before. The Pseudomonas is new. ...
08.01.2013
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