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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- School attendance
- I have a 9-year-old daughter with atypical CF, but who is so sick that I have taught her at home for two years now. The school does not know how to deal with her, and in the end they approved individual education for her. I'm worried about how long I can manage to teach her, and whether we don't ...
- 19.01.2009
- Forest kindergarten
- Dear Expert Team, our little daughter (13 months) is a CF patient. She mainly has digestive problems (two intestinal obstructions already). So far, she has not had any severe infections and her lung is clear. Nevertheless, she inhales saline solution twice a day. We are now considering enrolling ...
- 15.01.2009
- Preschool (Kindergarten)
- What do I have to take into account as the leader of a preschool (Kindergarten) when I am planning to host a child suffering from CF in my instituion?
- 13.11.2008
- School – two children with CF
- Hello, our son Dennis will start school in summer. Currently we learnt that there is already another child with CF at that school (third grade). Now our doctor is concerned, because the girl at that school is “badly off” and already had several bacteria, among them pseudomonas. Are we ...
- 26.06.2008
- Kindergarten with CF/Pseudomonas
- Hello, I have registered my daughter with CF for kindergarten. Now, the kindergarten possibly does not want to admit her because they cannot supervise the enzyme substitution and guarantee to avoide problematic germs (Pseudomonas). This is not only regarding the toilet but also the usage of ...
- 23.04.2008
- Training
- My son (19 years old) suffers from CF since birth, including cirrhosis of the liver, pancreatic insufficiency, since 2002 diabetes - still on tablets - colonization with Pseudomonas, since 2006 colonization with Burkholderia cepacia - 2-3 times a year i.v. therapy. In September 2006 he started a ...
- 21.03.2008
- Convalescent care with MRSA
- How do I get convalescent treatment despite the suffering from MRSA? My nine years old daughter has CF, PSA probably since she was born, MRSA since two years. We, the parents, are physically and mentally down, our nine years old is overstrained by this situation and her school marks have ...
- 13.10.2008
- Several children suffering from CF in the kindergarten
- Dear expert team, I got the question from a kindergarten, if there is no risk in having two children suffering from CF (one 3 years old, the other one 5 years old, not related) in the same kindergarten (different groups, but no strict separation). Parents and nursery school teachers are worrying ...
- 14.12.2007
- Normal kindergarten and nevertheless individual integration
- Hello, my 21-month-old son is going to be reintegrated into a normal kindergarten. He already visited a normal kindergarten before we knew the diagnosis of Cystic Fibrosis and we as parents and our son liked it very much. The he could not visit the kindergarten for a certain time because of ...
- 02.11.2007
