Topics

ABPA or APC?
Dear expert team, I am 22 years old and have CF. For some time now, my IgE has repeatedly been elevated (above 500). A RAST sensitivity class 3 to aspergillus is given; the sputum showed candida above all. The remaining values do not point to ABPA. Does this suggest ABPA? Or could it be ACP? ...
15.01.2013
Causes of hair loss
Dear expert team, Since an exacerbation at the end of March 2012, which was probably caused by ABPA, I (25, female, CF) have to take several additional drugs. Around May 2012 I noticed that I am losing decidedly more hair than earlier. I initially blamed the itraconazole I had started taking, ...
11.12.2012
Cave
Hello, Are there recommandations against visiting natural caves for children with cystic fibrosis? I think especially about the Pseudomonas aeruginosa germ. Otherwise what precautions should we take (wearing a mask) ... thank you
15.11.2012
Bronchitol®(mannitol) and ABPA
Hello! I have CF and would like to get a prescription for Bronchitol®(mannitol) in addition to my other drugs. Currently, however, I am being treated with corticosteroids and antimycotics against ABPA. My question: is there any experience with or contradindication for using mannitol in this ...
24.08.2012
Continued fever with CF
Dear expert team, our 14-year-old son has been running a fever of more than 39 degrees since April. He has P. aeruginosa, mycobacterium abscessus and ABPA. He has a port that was already contaminated with staph epidermids and changed in 2010. Currently, he is taking Tobi® (tobramyin), ...
02.08.2012
Fungus
Our daughter has CF. there are black fungus spots in our garden house. Do these pose a danger for our daughter.
29.05.2012
Bathroom refurbishment
Hello, Our new landlord would like to completely refurbish our bathroom (built in 1970). He wants to put in new tiles, take out the bathtub and build in a wider shower. Since our son is already chronically colonized with PSA, we are worried 1) that even with protective foil on the door, ...
15.05.2012
ABPA
I am 31 years old and have CF and diabetes. At 13, I had ABPA for the first time and was treated with cortisone. I had the second ABPA (RAST class 4) in fall 2006 and was treated with Decortin H® (prednisolone) for one year, starting with 50mg. My current IgE is at 519; in addition, the specific ...
16.01.2012
antibiotic treatment
My son (25 years) is colonized by Staphylococcus aureus R (MRSA), Alcaligenes xylosoxidans, Aspergillus fumigatus. He has IV treatments over and over, the germs have become resistant to antibiotics. The Zyvoxid (Linezolide), is no longer effective. Can we hope that former antibiotics would become ...
10.11.2011
P. aeruginosa and horse riding
My eight years old little boy is willing to practice horse riding. But I read that some animals carry P. aeruginosa and that we had to be careful concerning the risks of transmission while riding. Could you please give me more precise information on the subject? Thank you.
10.11.2011
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