Topics

Nortase®
Is it possible to use Nortase® in case of a known ABPA and CF? If not, are there alternative preparations? The normal pancreatic enzymes are already given in a very high dosage and seem not to be sufficient, omeprazole is already taken for a longer time. Thank you.
29.09.2014
What is the meaning of solid particles in the sputum?
Dear expert team, I (female CF patient with Pseudomonas colonization and asthma) observe for about half a year that I have in the sputum smaller to larger pinpoint particles of deep grey colour. These mostly only come out after a hard, crampy cough and occur every one to two weeks. Can this be a ...
21.08.2014
Airing in the car / air-conditioning bad in case of CF?
Dear expert team! As we do not have a car, my daughter (21 months, CF) is only very rarely sitting in a car. After the last car ride two days ago, however, she was completely horse and had a strong and coated cough. She was then coughing every night very much and woke up therefore regularly. At ...
21.08.2014
Gardening
Can a person suffering from CF do gardening (contact with soil, grass) without too much risk? I've had several Pseudomonas and aspergillus infections. Thank you.
29.07.2014
CF and cortisone
Dear expert team, as a CF patient with severe allergic asthma (trees, grasses, fungus spores) I face the problem to be forced to reduce the cortinsone (prednisone 10 mg daily / symbicort 200® (budesonide and formoterol) 3puffs 3 times daily) that I take for 10 years, due to recurrent ...
08.07.2014
hypersensitivity pneumonitis
Hi can someone please help i am 35 years old and very sic i have been diagnosed with hypersensitivity pneumonitis and we dont seem to have the right medication here in australia for my condition .I dont know waht else to do thanks
07.07.2014
Visit of a farm
Hello, my son has a one-day outing in a farm with his college. His professor of biology informed me that the chlidren will spend all the day inside the farm, in the middle of the various animals, with a picnic next to them, cow milking etc. Thus my son would remain locked and not be outdoors, but ...
24.06.2014
Air-exhausting systems, what has to be paid attention to
Dear expert team, I move with my daughter (CF, 18 months old) to an appartment, where the bathroom has no window: there is an air-exhausting system (which one exactly, I do unfortunately not know). I have already looked for adequate former questions on the ecorn-cf site, however I could not make ...
14.05.2014
Causes of ABPA
Dear expert team, I (CF, 26, female, FEV1 about 65%) would like to ask you for your opinion concerning an ABPA (allergic bronchopulmonary aspergillosis). Already in March 2012 I was suspected to have an ABPA, as the typical antibiotic drugs did not help for the symptoms of an infection, however, ...
12.05.2014
Wet home
Hello, I have a little 5-year-old boy with cystic fibrosis, this summer we want to go on holiday next to Pornic (44) where my grandparents have a small house but we sleep in the bungalow (it’s an old garage). They live 50 meters from the sea, the bungalow is wet, they put regular anti-humidity ...
12.05.2014
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