Topics

29 years old CF patient
I am from Romania and I have a 29 years old son with CF, which was diagnosed late... when he was 24 (genetic mutation-milder form= G85E; R347P and sweat test= 110) In childhood he was diagnosed with a syndrome malabsorption. At age 12 he already had sinusitis and nutrition problems, dry cough.. ...
09.12.2013
Mild cystic fibrosis
What is the incidence of a mild cystic fibrosis? Is the prognosis for survival concerned? What is the future? (My daughter is 8 years old).
18.11.2013
Cystic Fibrosis
Why is cystic fibrosis more common in light-skinned than in dark-skinned people?
22.10.2013
High blood levels of triglycerids
Hello, I am 32 years old, and was diagnosed with bilateral absence of the vas deferens (CBAVD). I am heterozygous for the DF508 mutation (second possible mutation unidentified) and "suffering" from chronic sinusitis. My sweat test, if I understood, ranges in the intermediate values and does not ...
21.10.2013
Hypertriglyceridemia
Hello, I asked a few days ago a question about high levels of triglycerides in the case of an isolated CBAVD (congenital bilateral absence of vas deferens, heterozygous for the DF508 mutation, intermediate sweat test, chronic sinusitis). I realize that I was wrong when I mentioned a high HDL ...
21.10.2013
Life expectancy after lung transplantation
Hello, I would like to know, what is the life expectancy after a lung transplant? The transplant was done about fifteen years ago. Thank you.
30.09.2013
my life expectation
Hello ECORN-CF experts, I am 13 years old and I suffer from mild CF. Only my lungs are infected. My liver and other organs are all right. Everywhere I see things on the net about life expectations of 40. I am a normal child and want also a future. What is my life expectation? Gr. Imar
30.09.2013
How would I benefit from the diagnosis of CF?
Hello, my physician assumes an atypical CF. I have an exocrine pancreatic insufficiency for years (elastase: 65), partly increased blood sugar. Even after removal of the gall bladder I still had gallbladder sludge in the bile duct. Now a fat liver has to be added, even if I do not eat food rich ...
19.08.2013
Life expectancy, male fertility
Today life expectancy is what age? Can we have children and being a man with the disease (without adopting or use medicine)? Thank you for you reply
29.07.2013
Cystic fibrosis
DEAR EXPERT TEAM I would like to know more about the availabilty of Kalydeco® in Bulgaria and if there will be any point for someone suffering from CF with the mutations 621+1G/T, N1303K to try this medication and also if not suitable what other treatment should we look for in order to keep ...
22.07.2013
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