Topics

Disease severity degree
Hello, my 2-year-old CF daughter requires since birth very intensive care. The disease leaves her no lull. Today I am very worried about her life expectancy ... What are the criteria for severity of the illness? Are there still children who die young? Thank you in advance for your answer to this ...
15.07.2013
We don't know if our girl has CF, it's not sure yet
A blood sample for the genetic testing was taken just to exclude CF. If me and my husband are not CF carriers, is it possible for our child to have it? Or is it possible when both parents have CF?
08.07.2013
8 year-old girl with aquagenic keratoderma syndrom (follow up)
I asked about your opinion on my 8 year old daughter with Aquagenic keratoderma syndrome that appeared 6 months ago. Sweat test is 26 (performed 2 months ago). We have just received the results of the genetic blood test, which is negative for the 32 CFTR mutations studied in France today. By cons ...
01.07.2013
FEV1 in mild forms of cystic fibrosis
Hello, Are FEV1 of 100 % after the age of 30, history of frequent bronchitis, immunodeficiency in childhood, rhinitis and chronic sinusitis, and unexplained abdominal pain consistent with a mild form of cystic fibrosis?
19.06.2013
Hypoglycemia
Hello, My son, eleven months old with cystic fibrosis, was hospitalized for three days after hypoglycemia (he woke up one morning in a hypotonic state and he was not able to remain upright, emergency blood glucose was 0.39). The first results are ok, nothing has been detected, we expect more ...
19.06.2013
CF children
What has to be considered in a family with two CF children? How can we live a normal life and protect our children of the exchange of bacteria?
12.06.2013
Alcohol
Hello, Can a person with CF drink alcohol? And if not why? Thank you.
05.06.2013
healthy carriers
My niece has CF, the whole family has been tested and two other children are carriers. So 1 out of 7 children has CF and 2 are carriers. The other two children are compared to the non carriers often sick, so I told my sister in law who I thought was carrier of CF in her family. This was ...
03.06.2013
CF
Can you also have a mild form of CF? I mean that you are not sick even if you have a low lung capacity.
06.05.2013
Aquagenic keratoderma in a 8 year-old girl
Hello, My 8 year-old daughter has, since December 2012, an Aquagenic keratoderma (she is unable to keep her hands in the water, after a few minutes a painful unbearbale swelling occurs). The dermatologist in the hospital confirmed this, prescribed a sweat test (the result was 26) and now ...
03.05.2013
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