Topics

Mild cystic fibrosis
What is the incidence of a mild cystic fibrosis? Is the prognosis for survival concerned? What is the future? (My daughter is 8 years old).
18.11.2013
Cystic Fibrosis
Why is cystic fibrosis more common in light-skinned than in dark-skinned people?
22.10.2013
High blood levels of triglycerids
Hello, I am 32 years old, and was diagnosed with bilateral absence of the vas deferens (CBAVD). I am heterozygous for the DF508 mutation (second possible mutation unidentified) and "suffering" from chronic sinusitis. My sweat test, if I understood, ranges in the intermediate values and does not ...
21.10.2013
Hypertriglyceridemia
Hello, I asked a few days ago a question about high levels of triglycerides in the case of an isolated CBAVD (congenital bilateral absence of vas deferens, heterozygous for the DF508 mutation, intermediate sweat test, chronic sinusitis). I realize that I was wrong when I mentioned a high HDL ...
21.10.2013
Life expectancy after lung transplantation
Hello, I would like to know, what is the life expectancy after a lung transplant? The transplant was done about fifteen years ago. Thank you.
30.09.2013
my life expectation
Hello ECORN-CF experts, I am 13 years old and I suffer from mild CF. Only my lungs are infected. My liver and other organs are all right. Everywhere I see things on the net about life expectations of 40. I am a normal child and want also a future. What is my life expectation? Gr. Imar
30.09.2013
How would I benefit from the diagnosis of CF?
Hello, my physician assumes an atypical CF. I have an exocrine pancreatic insufficiency for years (elastase: 65), partly increased blood sugar. Even after removal of the gall bladder I still had gallbladder sludge in the bile duct. Now a fat liver has to be added, even if I do not eat food rich ...
19.08.2013
Life expectancy, male fertility
Today life expectancy is what age? Can we have children and being a man with the disease (without adopting or use medicine)? Thank you for you reply
29.07.2013
Cystic fibrosis
DEAR EXPERT TEAM I would like to know more about the availabilty of Kalydeco® in Bulgaria and if there will be any point for someone suffering from CF with the mutations 621+1G/T, N1303K to try this medication and also if not suitable what other treatment should we look for in order to keep ...
22.07.2013
Disease severity degree
Hello, my 2-year-old CF daughter requires since birth very intensive care. The disease leaves her no lull. Today I am very worried about her life expectancy ... What are the criteria for severity of the illness? Are there still children who die young? Thank you in advance for your answer to this ...
15.07.2013
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