Topics

Characteristics of CF at young adult age
My question is: what is the chance that the diagnosis of CF is only made at a later age. I am 20 years old and have no previous complaints. Recently I seem to have a lot of secretions that go from my nose to my throat. And recently I seem to notice that my stools are fatty. I wonder if this an ...
03.05.2012
2009 French CF Registry Report
Hello I have a question about the graph (Figure 4) on page 4 of the french CF registry: what explains the lower probability of survival of the cohort 2007-2009 as compared to other birth cohorts? (dropping out of the curve between 2-3 years duration).
02.05.2012
Late detection
Hello, My brother has been found to have cystic fibrosis. He is 48 years old. He seems to have a liver problem with a high value of gamma GT. Is this possible? What is his life expectancy? Is there a cure? Where can he be well be treated (he lives near Lorient in Brittany)? Should we be tested ...
02.05.2012
Menopause and hormone replacement therapy in CF
Hello, Which modifications of the disease can menopause cause (I am 53 years old)? Would a hormone replacement therapy have positive or negative effects?
02.05.2012
CF and healthy carrier
What is the concept of healthy carrier?
24.04.2012
A Friends child
I suspect that a friends 1 yr old might have CF, he is ill every week, has had a cough since he was tiny, sicks up mucus and she tells me his stools are/were greasy. The only thing that buts doubt in my mindf is he is a very healthy weigh. I have hinted and even mentioned CF once but each time ...
24.04.2012
cystic fibrosis
What are the chances of survival or rehabilitation for my 6 month old boy, if he is alway in the hospital and his status is worsening every day. Some people tell me one thing, others tell me a differrent thing and I don’t know what to think anymore. Please write to me.
22.03.2012
Cystic Fibrosis deltaF508/deltaF508
Hello. I am "host family" and I look after a 12 years old CF girl. On her annual assessment, I could read: mutations delta F508 /delta F508. What does it mean? I know that there are several CF. Could you tell me if she belongs to those who have "moderate form", so to speak? Her treatment is: 8 to ...
28.02.2012
follow up the disease
My baby has deltaF508 and R1070W and is almost healthy (details are in a previous question). How do you recommend to treat the baby so that we do not tantalize with many investigations but also keep on eye on the disease. E.g. it was recommended to me to do monthly analyse of sputus, but I see ...
24.01.2012
Classes of genes
What are the classes of CF gene mutations? Thank you
23.01.2012
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