Topics

Germs in cistern water
Hello, my adult daughter (CF) lives in her own home but she also stays at our home frequently, especially to get some fresh air and sun in the garden. Our neighbour waters his garden with cistern water. Yesterday in the evening I noticed a disgusting smell like liquid manure. The water has ...
20.09.2012
Nontuberculous mycobacteria and transplantation
Hello, I have CF and I have been colonized with Mycobacterium abscessus for the past three years. I have been previously told that M. abscessus colonization was a contra-indication to transplantation. Why? Recently, more and more centers accept to perform lung transplantation in patients ...
11.09.2012
Mycosis
I would like to understand and know why I have freuqently vaginal yeast infections or a lot of vaginal discharge. Is it due to cystic fibrosis ? If yes why and how to avoid it. When I take antibiotics it happens to me, but right now this is not the case. Thank you in advance. Sincerely,
11.09.2012
Continued fever with CF
Dear expert team, our 14-year-old son has been running a fever of more than 39 degrees since April. He has P. aeruginosa, mycobacterium abscessus and ABPA. He has a port that was already contaminated with staph epidermids and changed in 2010. Currently, he is taking Tobi® (tobramyin), ...
02.08.2012
Effective mircoorganisms (EM)
Dear expert team, We would like to use effective microorganisms (EM) in our house (e.g. for cleaning). We are wondering whether the bacteria contained in them constitute a risk for individuals with CF. Otherwise, the reports are generally positive. We are looking forward to your ...
02.08.2012
Lab Equipment
HI I have a son with CF. We are trying to improve facilites etc in the regional CF Centre. I have come across some info on a piece of lab equipment for detecting bacteria in sputum and blood samples. It seems the results are available within 24hrs. Have you come across the "MALDI TOFF"? ...
23.07.2012
modeling clay
Hello, As a Psychologist I work with children with CF, I question the use of modeling clay with children: is it possible to use the same clay from one session to another with the same child? Or better throw it in the end of each session and take a new, unused, at the next meeting to avoid the risk ...
09.07.2012
Staphylococcus aureus
I am 29 years old; I am coumpound heterozygous for deltaF508 and R347P mutations. I was chronically infected by Staphylococcus aureus and took Minocycline since 2006, because of frequent exacerbations and recurrent use of intravenous antibiotic courses. With this treatment I feel very well. ...
11.06.2012
Cystic Fibrosis-microorganisms
Dear madam/sir, I would like to know which organisms are present when somebody suffers from cystic fibrosis. Thank you!
05.06.2012
Sick parent and measures
Hello I have a one year old child with cystic fibrosis. When the parents have a disease like rhinitis, is the use of alcohol based hand gel and mask enough?
15.05.2012
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