Topics

altitude
Hello, My boy would normally participate in a mountain trip with his class this winter. The children normally go to the Dolomites, Italy, to downhill skiing with a high altitude (1800 m +). Are there risks for my 12 years old child ? Is he susceptible to have breathing problems? If so, which ...
29.09.2011
Exercise and cystic fibrosis
is there documentation about physical activity and cystic fibrosis?
29.09.2011
strenght training: power plate
Hello, Strenght training is recommended to ensure one's health. Is Powerplate possible? Is it possible with a totally implantable venous access device? Is there a risk or a contraindication? For instance can it move because of the vibrations?
20.09.2011
Indoor private pool
Hello, we consider the purchase of a house with a covered private pool, but I worry that this may not be ideal for our son who has CF. Can we trust regular pool maintenance? What should we do extra? Can we specifically avoid Pseudomonas? Or should we just not buy this house? Thanks for your reply!
30.08.2011
bacteria private pool
Hello, We have a private pool. Despite the usual treatments done, I'm afraid that the water is infected, including Pseudomonas. Is it recommended to perform a thorough analysis of water before each summer through a private lab? thank you in advance for your reply
02.08.2011
swimming
We will soon visit friends who have a new pool treated not with chlorine but with salt. They certify that their water is very clean but I do not know if my daughters (both have CF) can bath safely. The hospital that follows them has no clear answer to me, and it seems that there are no studies on ...
20.06.2011
Safety to swim in stagnant water
I have a question whether CF patients are not allowed to swim in stagnant water. And how is it with swimming in the sea?
09.06.2011
medicines - muscles
Hello, I am the mother of an almost 16 years old boy with cystic fibrosis. He practices an average of 17 hours of sport per week (school and soccer in club). For a while, he often suffers from various injuries, especially contracture (thigh and back). His physio asked me to inform me whether ...
07.04.2011
CF and swimming in the sea
I have a question whether CF patients are not allowed to swim in stagnant water. And how is it with swimming in the sea?
24.03.2011
Swimming in lake
Hello, I'm an adult with cystic fibrosis 36 years and I'd like to know if swimming in the lake (freshwater more generally) is not recommended because it would involve risks of infection. Is it better to go "off" rather than at the edge where water is more stagnant? Regards.
24.03.2011
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