Topics

Cystic Fibrosis
How does Cystic Fibrosis affect lungs and as a consequence the respiration?
24.03.2014
Bronchiectasis
My 14 year old son with CF was just told he has Bronchiectasis; is it reversible? The drs aren't doing anything about it?
24.03.2014
Pseudomonas
Is Pseudomonas (lung) curable?
03.03.2014
Impairment of ventilation
At a routine x-ray in december an impairment of ventilation on the right side of the lung has been found in my 2.5-year-old daughter. She had been given an antibiotic, jumped a lot and inhaled a lot, because she had an underlying infection. Now, after about 6 weeks, a control x-ray had been done, ...
24.02.2014
Oxygen supply of the lung
My 7-year-old daughter is under medical treatment in Spain since her 3rd month of life. She is suffering from CF and has now a lung volume of 35%. A transplantation is urgently necessary. For 10 month we have liquid oxygen for breathing via nasal tube at home. The physicians have NEVER offered this ...
24.02.2014
FEV1
Hello, I am a 46-year-old CF woman and my FEV1 has decreased after a pneumonia, that has been treated for 4 weeks with an i.v. cure because of Pseudomonas, about half of the value from 52% to 28% and I still need oxygen, two months after discharge from the hospital, in spite of the fact the ...
17.02.2014
Lung after DLTX (double-lung transplantation)
Dear expert team, in case a CF patient has had a lung transplantation, is and stays the lung "free of CF" then? That means: does it not congest with mucus anymore? Or does one have to go on with physiotherapy and inhale mucolytic drugs? Many thanks!
17.02.2014
CT of the lung appropriate?
Hello, I am 35 years old and in the frame of an genetic investigation it came out that I am a carrier of CF. When I was a baby, I had a strong pneumonia. I suffer from allergic asthma and have slight clubbing of the fingers. A recently performed sweat test had a result of 42 (control area). In ...
11.02.2014
Strong cough at night
Hello, I have a 6-year-old daughter with CF and she is coughing for nearly 2 months, at day time less and at night time very much. What can I do for relief? She is taking antibiotics for the whole year with only few pauses, thus steadily. From the cough blocker noscapin she gets stomach ache. ...
03.02.2014
Cayston®, hemoptysis?
My son, 33, is told to inhale Cayston® (aztreonam) and has worries after reading the drug leaflet. He has had 3 times hemoptysis with years intervals inbetween, 2 times he had to be admitted to hospital due to this, whereby it was not necessary to intervene in the end. It is not written in the ...
03.02.2014
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