Topics

Lung function declined
[The original German question was asked in telegraphic style - this is also reflected in the translation] Hello, I am 38 years old and have CF. Since about half a year my lung function has declined. FEV1 35% and alltogether about 50%. The MRT does not show any decline. Oxygen is normal (97%). ...
01.07.2013
Atelectasis
My 15yr old daughter experienced an atelectasis in her right lung. She has been treated with IV antibiotics, airway clearance techniques and bronchoscopy for the past 6 weeks and the atelectasis is now 80% resolved. It seems that this problem may come back again despite rh-DNAse and airway ...
24.06.2013
Magnesium carbonate in climbing
How dangerous is the "chalk" for the lungs that is used during sport climbing and that is floating in the air in the halls? Can (healthy) parents take their CF-child/-baby with them for some hours daily into the climbing halls without concerns?
12.06.2013
Improvement of lung function during pregnancy
In case of a friend of mine, her lung function improved about 13% due to a pregnancy. What kind of experience do you have with pregnant women? It lasted for about 11 months until the lung function returned to the level before pregnancy.
12.06.2013
MRI for a 5-year-old child?
Hello, we have a 5-year-old child with CF. Our child is doing very well. Up to now, no problematic germs have been detected and the lung function is also very good. Now we have been told at the last visit of the CF center, that one would like to do in future an MRI with our child in order to ...
05.06.2013
Whooping cough (pertussis) and CF
Dear expert team, on the 3.3.13 I had asked a question on my severe dry cough, many thanks for the answer, Mrs. Dr. Smaczny. In the meantime I know what I have, whooping cough (pertussis) and that with 48 years! What I am astonished about is why the vaccination record is not check routinely, like ...
10.05.2013
Dry cough
Dear expert team, for 2 weeks I have an infection, which only consists of dry cough (healthy people without CF around me have the same infection with similar symptoms and duration). Every night I cough until after 12 o'clock. In the meantime also my larynx is affected, symptoms are pain and ...
19.04.2013
Thoracic distension
Hello, I would like to know what is a thoracic hyperinflation. Could it be cured and what is the cause? How can we diagnose that? Thanks for your response. Sincerely
16.04.2013
Mucolytics - do they make sense for infants?
Hello, We have a 4-year-old daughter with CF. For 3.5 years she gets 2 x 2,5 ml ACC (Acetylcysteine) daily (if there is more mucus a bit more). We are asking ourselves if it really makes sense to administer ACC on a daily basis. Our general practicioner said once that it would be good to ...
26.02.2013
Coughing
My 10 years old CF son has strong coughs that could last 3-4 hours in a raw. He says that it scratches his throat; I think that it might be an irritating cough? What could we do? As he must not take syrup, I tried honey but with no improvement. It tires him a lot! Thanks!
04.02.2013
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