Topics

How to react to an inexplicable decline in lung function?
Dear expert team, I am 24 years old and have CF. As a basic therapy, I have been inhaling colistin, salbutamol, Atrovent® (ipratropium bromide), saline solution 5.85% and Viani mite® (fluticasone/salmeterol) long-term. In addition, I take azithomycin orally, 3x500mg per week. My diabetes is ...
24.04.2012
Physiotherapy and pneumothorax
Can you practice physiotherapy sessions in case of a pneumothorax drained? If so, can it have adverse effects (make the drain bubble)?
22.03.2012
treatments
In which situations can anti-inflammatory drugs (steroidal or non-steroidal) be used to treat cystic fibrosis (CF)?
22.03.2012
Lung Clearance Index-European location
Dear questioner, First of all thank you for your prompt answer. I am interested in taking the Lung Clearance Index test in a European country where we can comunicate in english/french and where it isn’t so expensive. I am thinking first of Vienna or Spain (if we can comunicate in english) or ...
22.03.2012
Pulmonary arterial hypertension
Hello, What are the consequences of pulmonary arterial hypertension (PAH) in patients with cystic fibrosis? When does it occur? Is there an increased risk of mortality? Otherwise, are sports to be banned?
27.02.2012
follow up the disease
My baby has deltaF508 and R1070W and is almost healthy (details are in a previous question). How do you recommend to treat the baby so that we do not tantalize with many investigations but also keep on eye on the disease. E.g. it was recommended to me to do monthly analyse of sputus, but I see ...
24.01.2012
Lung Clearance Index
In witch hospital from abroad, could we do the lung clearance index for a child, 3 years old, with cystic fibrosis? We are interested in a hospital who receive private patients. Can you send me contact details? Thanks
02.01.2012
Nails
What is so special about the nails of children with CF? In one of the first contacts with our doctor he checked the nails of our baby son, but we forgot to ask him what’s so special about nails in CF.
02.01.2012
Lung rupture
I have a question: if one has a lung rupture (pneumothorax), is this treated with surgery? And if the surgery has been performed, is it possible that one is getting a tube? Is it normal to be released from the hospital the day after surgery? And if one then has problems breathing, is it true ...
13.12.2011
infection
Hello, Does a CF person who would never have pulmonary infections preserve his/her lungs or do the lungs will be however involved ? Thanks.
13.12.2011
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