Topics

CF worse in the winter?
Dear expert team, My son has a severe cough (including bringing up mucus) which starts in September and lasts until the end of April. From May until August, he does have a cough as well, but not as severe. He also has chronic polypoid pansinusitis, which we are able to manage quite well with ...
23.11.2010
Haemoptysis - numbness
Good evening! I am 23 years old and suffer from CF with df508 mutation. I have many bronchectasies and since some time ago I cough out blood every day, even in small quantities in my sputum, or on its own. The last 1,5 year something strange came up. Sometimes I cough, I have haemoptysis, even a ...
18.11.2010
MRI with cystic fibrosis
We were advised to do an annual MRI for our son (9 years old, CF). What are the experiences with that and is this harmful to the body? We also want to add that our son does not have any lung problems and his lung function is always good. Many thanks.
14.09.2010
Croup?
Hello, my 6-year-old son has been having coughs (infections) since age 1 and has to throw up mucus. The doctors said that he has croup. It is getting worse each year. Last year he had a budding pneumonia and empty-stomach vomiting, abdominal pain, and strange stool (brown-white-yellowish with ...
07.09.2010
Treatment of a long-term germ colonization
I have been living with the CF diagnosis for a long time. Today, the doctors think that it is not CF but “only” COPD with bronchiectasia. I have several infections every year which are always treated with antibiotics in tablet form (for several years now mostly cefuroxime and moxifloxacin). ...
07.09.2010
Pneumonias
Dear expert, I suffer from severe asthma which has proven to be almost completely resistant to therapy. The only thing that brings relief are high oral dosages of cortisone. Lung function is permanently limited. I have about three pneumonias per year in addition to several other infections. One ...
23.06.2010
Wind instrument
Our 5 year old child would like to learn a wind instrument. Is it good or bad for a CF patient to play a wind instrument with regards to the pressure on the lungs, etc.? And would it be better to use a plastic flute instead of a wooden flute since wood does not dry that quickly with regard to the ...
23.06.2010
Lung function baby
Dear expert team, our little daughter is 4 months old and was diagnosed with CF. She is doing well and we are already going to a specialised outpatient clinic. My question is: How is it possible to test the condition of the lung in such a young age in addition to a throat swab? And is it ...
16.06.2010
FEV1
Dear expert team, My question is: I am 30 years old and have an FEV1 of currently 81% which is stable for about 10 years now. How is the prospect for me or in other words: is it possible to predict if the FEV1 has to deteriorate inevitably? Many thanks.
23.04.2010
FEV 1
Dear experts, at measuring of the lung function of my 9-year-old daughter (CF) there are mentioned 2 FEV1-values. FEV1, measured in D%(actual1/desired) as 26.8 and FEV1% VC MAX, measured in D%(actual1/desired) as 20.9. Which of the two values corresponds to the "classical" FEV1-value, that means ...
21.04.2010
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