Topics

Pseudomonas
Is Pseudomonas (lung) curable?
03.03.2014
Impairment of ventilation
At a routine x-ray in december an impairment of ventilation on the right side of the lung has been found in my 2.5-year-old daughter. She had been given an antibiotic, jumped a lot and inhaled a lot, because she had an underlying infection. Now, after about 6 weeks, a control x-ray had been done, ...
24.02.2014
Oxygen supply of the lung
My 7-year-old daughter is under medical treatment in Spain since her 3rd month of life. She is suffering from CF and has now a lung volume of 35%. A transplantation is urgently necessary. For 10 month we have liquid oxygen for breathing via nasal tube at home. The physicians have NEVER offered this ...
24.02.2014
FEV1
Hello, I am a 46-year-old CF woman and my FEV1 has decreased after a pneumonia, that has been treated for 4 weeks with an i.v. cure because of Pseudomonas, about half of the value from 52% to 28% and I still need oxygen, two months after discharge from the hospital, in spite of the fact the ...
17.02.2014
Lung after DLTX (double-lung transplantation)
Dear expert team, in case a CF patient has had a lung transplantation, is and stays the lung "free of CF" then? That means: does it not congest with mucus anymore? Or does one have to go on with physiotherapy and inhale mucolytic drugs? Many thanks!
17.02.2014
CT of the lung appropriate?
Hello, I am 35 years old and in the frame of an genetic investigation it came out that I am a carrier of CF. When I was a baby, I had a strong pneumonia. I suffer from allergic asthma and have slight clubbing of the fingers. A recently performed sweat test had a result of 42 (control area). In ...
11.02.2014
Strong cough at night
Hello, I have a 6-year-old daughter with CF and she is coughing for nearly 2 months, at day time less and at night time very much. What can I do for relief? She is taking antibiotics for the whole year with only few pauses, thus steadily. From the cough blocker noscapin she gets stomach ache. ...
03.02.2014
Cayston®, hemoptysis?
My son, 33, is told to inhale Cayston® (aztreonam) and has worries after reading the drug leaflet. He has had 3 times hemoptysis with years intervals inbetween, 2 times he had to be admitted to hospital due to this, whereby it was not necessary to intervene in the end. It is not written in the ...
03.02.2014
Bronchial congestion
Hello, My 18-months old CF boy has presented a rhinitis last week (this was a loose cough with a clear runny nose). Our physiotherapist said that supplementary sessions of physiotherapy were not necessary because the bronchi were symptom-free. On the other hand the physiotherapist of my friend, ...
20.01.2014
Query
I would like your opinion about my baby. He is 9 months old and weighs 9.6 kg and is 71 cm tall. Since a month ago he has wet cough. My pediatrician said it was just a viral infection. He administered mucosolvan® (substance: ambroxol to losen the mucus) and spiropent® (substance: clenbuterol, a ...
30.12.2013
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