Topics

Hypertonic saline solution – study results for small toddlers
Dear expert team, Our daughter (now 15 months old) has been inhaling hyptertonic saline solution for 10 months (currently 3ml 3% twice a day, planned to increase to 6%). Now I came across the results of the following study: “Inhaled hypertonic saline in infants and children younger than 6 ...
13.12.2012
Cause of cough?
Dear expert team, my son (CF, 4 years old, 1.07m, 16.5kg, mild progression so far) rarely coughs when he does not have infections, only during strong physical action and sometimes after inhalation. For some time now, he has also been having a continuous cough (dry nervous cough) that starts ...
13.12.2012
IV effect
Dear CF team, I have been making the same recurring experience for several iv therapies: Before the iv: a lot of sputum and low physical fitness. One week after the start of the iv: less and lighter-colored sputum and better physical fitness –lasting for a few days. Starting with day ...
11.12.2012
Respiratory function - thoracic distension
Here is my question : I recently realized pulmonary function tests which showed increased residual volume and total lung capacity (RV=180% et TLC= 132%). I have never smoked but have had quite frequently a dry cough without expectoration for many years. Could you help me understand these ...
20.11.2012
Perfume (fragance) diffusers
Hello, Do you think that synthetic perfume (fragance) diffusers may be dangerous for lungs? Can we use them when our 2 years old girl is in the same location? Best regards. Thanks.
15.11.2012
Lung function
How to improve my child's lung functions (from 55% at present) and slow the further damage?
15.11.2012
Lung cilia
Hello Results of Brice Marcet (CNRS [National Center for scientific research], Sophia-Antipolis, France) concerning the identification of molecules that promote cilial growth of epithelial cells are good news but I imagine that we should be cautious before being too exited. However, could you ...
15.11.2012
Scedosporium
We just discovered my 12 years old CF son had Scedosporium. His FEV1 went down to 80%. Is there a treatment against this fungus to help recover his FEV1, that was always 100%? I am worried.
15.11.2012
Liquid sputum in the morning
Hello, I am 39 yr old CF patient with F508 del mutation. I am chronically colonized with P. aeruginosa and I have few exacerbations that I can usually handle properly. Since February (and my last antibiotic course), my sputum has became very liquid in the morning, which is disturbing. I have ...
15.11.2012
SPLUNC1 protein
Hello Could you give some information concerning SPLUNC1 and its effects in cystic fibrosis? Do we know well this protein or is it only the beginning of the research? Are there studies planned ? Thanks for your answer.
14.11.2012
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