Topics

Azithromycin
Hello, I am 37 years old and have CF. I am currently taking azithromycin again. Are there any long-term studies on the effects of this drug? Improvements in lung function, etc.? Many thanks.
02.08.2012
Looking for a further spasmolytic I do not know by now
Dear expert team, Before each colistin inhalation (I am resistant to other antibiotics by now), I am using currently the following drugs in a 4-day alternation: Atrovent® (ipratropium bromide) alternating with Berotec N® (formoterol) aerosol and Sultanol® (salbutamol) aerosol. In the mornings ...
02.08.2012
Very rare mutation
Hello, I appeal to you because I can not find on the internet the answer to my question: I was diagnosed with CF at the age of 5 months with Pseudomonas aeruginosa colonization from the beginning. I wanted to know if it was serious knowing that today I am 19 years old? And my mutation is the ...
23.07.2012
LVRC (Lung Volume Reduction Coil)
Hello, I (45, male) have an emphysema stage III and I would like to know if LVRC (Lung Volume Reduction Coil) could be a future method to increase FEV1 a bit… Thank you very much.
19.07.2012
Gain or damage by CT scan
What is the indication to do a CT scan in a 2-year old child with CF? What can we decide from that?
08.05.2012
Thoracic hyperinflation
Hello, The last thoracic X-ray of my 3.5 years-old daughter revealed a thoracic hyperinflation. What does that exactly means? Is it temporary or permanent? My physiotherapist told us that a belt could help her. How considering the follow-up when such a hyperinflation is observed at a such young ...
07.05.2012
Blueish tongue
Should one be worried when one repeatedly has blueish discoloration of the tongue? Is this a sign of shortage of oxygen? Can it occur in young children? Is it part of CF?
03.05.2012
MRI, CT
Why do people with CF need a CT or MRI scan? What are the pro’s and con’s. Especially with regards to children.
02.05.2012
How to react to an inexplicable decline in lung function?
Dear expert team, I am 24 years old and have CF. As a basic therapy, I have been inhaling colistin, salbutamol, Atrovent® (ipratropium bromide), saline solution 5.85% and Viani mite® (fluticasone/salmeterol) long-term. In addition, I take azithomycin orally, 3x500mg per week. My diabetes is ...
24.04.2012
Physiotherapy and pneumothorax
Can you practice physiotherapy sessions in case of a pneumothorax drained? If so, can it have adverse effects (make the drain bubble)?
22.03.2012
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