Topics

Antibiotics in chicken - nutritional recommendation
Dear editors, one reads again and again in the press that chicken (and also turkey) are filled up with antibiotics. As we as CF patients are indeed dependent on antibiotics in a special way, the following question comes to my mind: are CF patients allowed to eat chicken etc. at all, as they ...
18.11.2013
pseudomonas treatment
Dear ECORN Experts, I have a 5 years daughter. Here where I live we do not have a cf specialist so we go to another country for controls. She was diagnosed with cf at 1 one month. Her sputum test came back positive for PA (Pseudomonas aeruginosa) for the first time on January this year. We ...
26.11.2013
17-month-old son with CF, Delta F508
Hello, My son currently has an infection (streptococcus pneumoniae in the throat swab). He has been prescribed Pancef®/cefixime (dosage: 1 x 5 ml, with probiotics 1.5 hours before intake). He weighs 11 kg. Could you provide advice?
22.10.2013
Inhalation in case of resistant Pseudmonas
My son is 33 years old, mutation genotype deltaF508 and R553x. He has inhaled colistin for decades and now his Pseudomonas germs are resistant. Furthermore I ask myself if it is not possible however, that in case of such a long exposure colistin passes minmally the blood-brain barrier as he ...
21.10.2013
MRSA
Dear expert team, I am 42-year-old CF patient (F 508 / 2789+5G-A), however in very good general condition (FEV1 5.63 L. 98 kg body weight (athletic)). Besides 2 times daily inhalation with sole NaCl solution I do not any further therapies. Once a year, I have a control at the CF-center. ...
14.10.2013
E.coli
Dear expert team, I am 47 years old, CF, and contracted E. coli in the lungs. A first i.v. treatment approach with Cefotaxime reduced the germ count but that was it. Now I am supposed to inhale Colistin, E. coli is sensitive. I also take Amoxiclav against staphylococcus aureus that I have ...
12.08.2013
Rare germ Inquilinus limosus
Dear expert team, My son 11 year-old son, suffering from CF, has been diagnosed to bear the germ Inquilinus limosus. (Apart from that he is from time to time colonized with Staphylococci, Candida or Aspergillus). As this germ seems to be very seldom, some statements contradict, therefore I ask ...
12.08.2013
Always pseudomonas after visiting swimming pool – does colistin help prophylactically?
Hello, Our daughter (12 years, CF) was three times in an open air pool in her life and each time she had pseudomonas afterwards. It was always possible to eradicate it and she never had pseudomonas again. As a matter of course she would like to go to the swimming pool but until now we have ...
31.07.2013
colistin
Hello, I would like to ask you how many types of Colistin do exist? Can we mix 1ml powder I.U. with 10 ml saline solution for nebulization? Can one use 5 ml twice daily on a 6-year-old girl for sinusitis? Thank you.
08.07.2013
MRGN (multi-resistant gram-negative rod-shaped bacteria)
Dear ladies and gentlemen, after 3 years, there has been a renewed finding of Pseudomonas in my son (23 years old). 10.000 - 100.000 Pseudomonas (mucoid stem) with the warning, it was a 4MRGN-stem (multi-resistant gram-negative rod-shaped bacteria against 4 main antibiotic groups). Sensibility ...
01.07.2013
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