Topics

simia
I would like to know what influence has the bacteria simia on cystic fibrosis
05.11.2012
What is known about anaerobic bacteria in CF?
What is known about anaerobic bacteria in CF?
25.10.2012
Pseudomonas, part 1 & 2
My daughter is four years old and has CF with the n1303k mutation. Despite her bad condition, the diagnosis was made only a year ago. We are at a CF clinic. Two weeks ago we went for a check-up and were told that if a swab showed a germ, I would be notified. I used to call myself, but the nurse was ...
16.08.2012
Azithromycin
Hello, I am 37 years old and have CF. I am currently taking azithromycin again. Are there any long-term studies on the effects of this drug? Improvements in lung function, etc.? Many thanks.
02.08.2012
Continued fever with CF
Dear expert team, our 14-year-old son has been running a fever of more than 39 degrees since April. He has P. aeruginosa, mycobacterium abscessus and ABPA. He has a port that was already contaminated with staph epidermids and changed in 2010. Currently, he is taking Tobi® (tobramyin), ...
02.08.2012
Vessel problems with i.v. therapy
Dear experts, I am 31 years old and currently in the second CF stage, and before all else, let me say that a port is not yet an option for me. I have already had several i.v. therapies, although the last three have not been completely without problems. The therapies as such were successful, but ...
30.07.2012
drug for pseudomonas
Good evening. I have pseudomonas in my lungs since many years ago. I follow a treatment with tobi® and tadim® (colistimethate sodium powder) interchangeably. Is there a medication that is cheaper than tobi?
11.06.2012
Staphylococcus aureus
I am 29 years old; I am coumpound heterozygous for deltaF508 and R347P mutations. I was chronically infected by Staphylococcus aureus and took Minocycline since 2006, because of frequent exacerbations and recurrent use of intravenous antibiotic courses. With this treatment I feel very well. ...
11.06.2012
Infection
What does infection with mycoplasma do to a patient with CF and is this easy to treat?
08.05.2012
Renal gravel
Dear expert team, my 7-year-old son has CF (F508 homozygous), his current FEV1 is at 88.4% and he is being treated with antibiotics continuously (cephalexin 1000mg and ciprofloxacin 250mg – 3 weeks on/3 weeks off, as well as colistin). We do an i.v. therapy at home once every year, the last ...
08.05.2012
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