Topics

antibiotics
Hello, At the request of our CF-center, our 4 year old daughter is constantly on antibiotics all winter (alternating 15 days josamycin (macrolide) / cefpodoxim (cephalosporine) October to April), regardless of her state of health, particularly when "okay." We have no doubt of the benefit of ...
14.03.2013
Tolerability of Cayston®
Hello, I have CF and asthma and therefore I inhale Cayston® (Aztreonam lysine) every second month (intolerability of Tobi® (Tobramycin inhalation solution) and Colistin)). I tolerate Cayston® better but only if I dissolve it with 0.9% NaCl and not with 0.17% sodium chloride solution enclosed ...
14.03.2013
Eradication of Pseudomonas aeruginosa infection
My daughter cultured Pa at the last clinic visit. She was symptom free. The doctor prescribed 28 days of inhaled Antibiotic, and I asked to add an oral antipseudomonal, but she would not. Finished the 28 day cycle, and a week later my daughter has a raging lung infection and now pneumonia. I ...
04.03.2013
Staphylococcus aureus
Hello, my 6 month old daughter has cystic fibrosis and has already Staphylococcus aureus (10 000/ml) in her sputum. Is it serious? Isn't it too early? No treatment has been done at the moment but I'm worried ... Thank you for your response.
04.02.2013
Antibiotics only because of common cold?
Dear expert team, Our daughter (19 months; diagnosed since about 7 months) never had an infection and according to the physiotherapist and the CF center her lungs are absolutely free. Thanks to Kreon® (Pancreatin) her weight is okay as well. Since two days she has a common cold and I am not ...
29.01.2013
Aerosol in an 18 months-old child
A Pseudomonas aeruginosa has been found for the first time in the sputum of my 18 months-old son. The CF Centre physicians have decided to treat him with twice daily nebulized antibiotics (15 minutes per nebulization). He totally refuses the nebulization and when I force him to do that, of course ...
21.01.2013
Clostridium diff.
Dear expert team, A good friend (30 years old) was diagnosed with small numbers of clostridium diff. through a stool test. During some internet research I read that these can be infectious and that they have to be considered a normal intestinal germ in healthy people. I am a CF patient and ...
15.01.2013
Mycobacterium simiae
My daughter has been receiving ceftazidime and amikacin, followed by meropenem and amikacin and clarythromycin 500 mg bid. Because of gastrointestinal side effects, the dose of clarythromycin was recently reduced but my daughter had to stop this treatment due to these side effects. Is there another ...
14.01.2013
Great concern – requesting an answer
Dear expert team, A friend of mine has CF. She now has the following germs in her sputum: high counts of Pseudomonas fluorescens, Burkh. gladioli, Enterobacter, Candida albicans, and masses of Haemophilus parainfluenzae. The Burkh. gladioli had been detected often before. The Pseudomonas is new. ...
08.01.2013
IV effect
Dear CF team, I have been making the same recurring experience for several iv therapies: Before the iv: a lot of sputum and low physical fitness. One week after the start of the iv: less and lighter-colored sputum and better physical fitness –lasting for a few days. Starting with day ...
11.12.2012
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