Topics

Scedosporium
We just discovered my 12 years old CF son had Scedosporium. His FEV1 went down to 80%. Is there a treatment against this fungus to help recover his FEV1, that was always 100%? I am worried.
15.11.2012
resistance
Hello I would like to know when resistance to antibiotics occurs. Is it smart to change regularly the maintenance dose? What are the consequences of antibiotic resistance? Are there enough effective antibiotic treatments? Thank you
14.11.2012
Carbapenems
On the internet I read articles highlighting the resistance of Pseudomonas aeruginosa against carbapenems. Still they are used in patients with cystic fibrosis to reduce the Pseudomonas aeruginosa (like they do with my daughter). Could you say something meaningful about this?
05.11.2012
simia
I would like to know what influence has the bacteria simia on cystic fibrosis
05.11.2012
What is known about anaerobic bacteria in CF?
What is known about anaerobic bacteria in CF?
25.10.2012
Pseudomonas, part 1 & 2
My daughter is four years old and has CF with the n1303k mutation. Despite her bad condition, the diagnosis was made only a year ago. We are at a CF clinic. Two weeks ago we went for a check-up and were told that if a swab showed a germ, I would be notified. I used to call myself, but the nurse was ...
16.08.2012
Azithromycin
Hello, I am 37 years old and have CF. I am currently taking azithromycin again. Are there any long-term studies on the effects of this drug? Improvements in lung function, etc.? Many thanks.
02.08.2012
Continued fever with CF
Dear expert team, our 14-year-old son has been running a fever of more than 39 degrees since April. He has P. aeruginosa, mycobacterium abscessus and ABPA. He has a port that was already contaminated with staph epidermids and changed in 2010. Currently, he is taking Tobi® (tobramyin), ...
02.08.2012
Vessel problems with i.v. therapy
Dear experts, I am 31 years old and currently in the second CF stage, and before all else, let me say that a port is not yet an option for me. I have already had several i.v. therapies, although the last three have not been completely without problems. The therapies as such were successful, but ...
30.07.2012
drug for pseudomonas
Good evening. I have pseudomonas in my lungs since many years ago. I follow a treatment with tobi® and tadim® (colistimethate sodium powder) interchangeably. Is there a medication that is cheaper than tobi?
11.06.2012
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