Topics

girl with CF, monthly period
Dear reader, My 14 year old daughter with CF had her first menstrual cycle 6 months ago. At the beginning it was not really regular (cycle of 28 - 30 days). The last 2 months the period came back too quickly. After 14 days or 8 days, she has again her menstruation. Is this related to CF? Should ...
07.05.2013
Cord blood and cystic fibrosis
Hello, my 20 year-old niece was diagnosed with cystic fibrosis, has many treatments and is awaiting a transplantation, my daughter is pregnant in the 4th month and she wondered if the cord blood would benefit her cousin, if so under what conditions and procedures? Thank you for your reply.
03.05.2013
Aquagenic keratoderma in a 8 year-old girl
Hello, My 8 year-old daughter has, since December 2012, an Aquagenic keratoderma (she is unable to keep her hands in the water, after a few minutes a painful unbearbale swelling occurs). The dermatologist in the hospital confirmed this, prescribed a sweat test (the result was 26) and now ...
03.05.2013
Mice
Dear experts! For a longer time I have mice from outside in my appartment! As I have read about all the diseases such mice can transmit (e.g. Hanta virus), I am seriously worried. I do not know anymore how I should handle it with the hygiene, as the creatures have been almost everywhere, kitchen, ...
22.04.2013
Henoch-Schoenlein purpura as reaction to Pulmozyme®?
Dear experts, our daughter, 9 years old, is in a good general condition. However, she just had a common cold. Her immune system reacted normally, the fever disappeared after one day, then for 2 days increased temperature. She also had a strong cough in the upper area, no bronchitis, the lungs were ...
16.04.2013
Frogs
Hi. I would like to know if a CF child could eat frogs and snails, knowing that these animals live in water. I think that a large cooking time for snails kills germs but maybe it works much less for frogs? Thank you.
09.04.2013
Asbestos
Hello, We are parents of a girl with CF, aged 2 years. We will move soon and have discovered that the roof of a house extension (7m2) is covered with corrugated fiber cement containing asbestos as well as a vent in the attic. The diagnosis shows that it is in good condition, but we wonder if we ...
26.03.2013
Common ivy
Hello, I have read that «common ivy» is beneficial for the treatment of bronchial inflammation, chronic bronchitis and that it favours the elimination of mucus. Can you tell me if research has been done concerning the efficacy of «common ivy» in cystic fibrosis ? Thank you in advance for ...
14.03.2013
IVIG (intravenous immunoglobulins) infusion
At age 25 I had diagnosis of Allergic bronchopulmonary aspergillosis. At 59 my current age I had a diagnosis of CF by a CF doctor. I have a Delta F508 gene and the 5T variant. I also have a Primary Immune deficiency diagnosed by an immunologist. I had no titers to the pneumonia vaccine. In ...
04.03.2013
Moisture and sea
Hello, We live in Casablanca with our 4 year old daughter who has cystic fibrosis. It is a city polluted by its industries, its untreated waste and a growing and unregulated car fleet. The climate is temperate with an average of 21 degrees (10 in winter nights and 28 in summer days). The moisture ...
28.02.2013
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