Topics

Moisture and sea
Hello, We live in Casablanca with our 4 year old daughter who has cystic fibrosis. It is a city polluted by its industries, its untreated waste and a growing and unregulated car fleet. The climate is temperate with an average of 21 degrees (10 in winter nights and 28 in summer days). The moisture ...
28.02.2013
voice and CF
Hello I am a student in audio phonology, and I make a presentation on cystic fibrosis, and the impact of this disease on patients' vocal cords, could you tell me if there are few references in the field ? Thank you!
26.02.2013
stroll
Hello, My son is 7 months old and has cystic fibrosis. I love going for walks. But I wonder if there is weather to avoid: Rain, fog? Or a good walk is always good to take? Thank you very much!
18.02.2013
Coughing
My 10 years old CF son has strong coughs that could last 3-4 hours in a raw. He says that it scratches his throat; I think that it might be an irritating cough? What could we do? As he must not take syrup, I tried honey but with no improvement. It tires him a lot! Thanks!
04.02.2013
Pseudomonas and wind instruments
My daughter would like to learn one of the following instruments: flute (German flute), saxophone, clarinet, horn, trumpet. We are worried that a water bug (Pseudomonas) could colonize the instrument since these instruments cannot be cleaned very well. Is one of the instruments more suitable than ...
04.02.2013
Why does my son get sickly pale in the face for periods of several weeks?
My 11-year-old son, who has CF, becomes from time to time sickly pale in the face and the pallour can last several weeks. He also gets dark circles under his eyes. This happens maybe once in a year or two years. The symptoms gradually vanish. I've googled this in various CF forums and noticed ...
31.01.2013
Cold weather
My 4 year old with cf is being sent out at lunch and break times in this cold weather when I have asked teachers not to is this right
31.01.2013
Fireplace and CF
Ι have a five year old boy with CF. Up till now we used air-conditioning for heating the house. This year we decided to buy a woodstove. Since nothing works perfectly (e.g. there may be smoke leakage), would you recommend the use of a stove or fireplace (with or without pellets) for people with CF?
22.01.2013
construction of house / fireplace ?
Hello, We are parents of a CF little girl of 10 months and we are building our house. As part of the disease, we wonder if there are precautions to observe that could allow her to live in an environment as healthy as possible, and also make our lives easier in terms of hygiene at home. - A ...
15.01.2013
ions exchange
Hello, my daughter (10 years, suffering from cystic fibrosis) was found during a visit to the emergency (tarchycardia, low grade fever, loss of sight - she saw only black and red, weakness, tremors of the limbs) to have an abnormally low potassium in the blood. Everything was back to normal after ...
14.01.2013
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